{"id":33163,"date":"2026-01-20T14:19:02","date_gmt":"2026-01-20T14:19:02","guid":{"rendered":"https:\/\/lifelonghearing.com\/sk\/?p=33163"},"modified":"2026-01-23T09:14:07","modified_gmt":"2026-01-23T09:14:07","slug":"traja-synovia-tri-vyzvy-skusenost-mamy-s-vychovou-deti-so-specialnymi-potrebami-jeden-ma-stredne-tazku-poruchu-sluchu-a-dvaja-autizmus","status":"publish","type":"post","link":"https:\/\/lifelonghearing.com\/sk\/traja-synovia-tri-vyzvy-skusenost-mamy-s-vychovou-deti-so-specialnymi-potrebami-jeden-ma-stredne-tazku-poruchu-sluchu-a-dvaja-autizmus\/","title":{"rendered":"Traja synovia, tri v\u00fdzvy \u2013 sk\u00fasenos\u0165 mamy s v\u00fdchovou det\u00ed so \u0161peci\u00e1lnymi potrebami: jeden m\u00e1 stredne \u0165a\u017ek\u00fa poruchu sluchu a dvaja autizmus"},"content":{"rendered":"

Rozhovor s mamou Dadou o\u00a0rozmanit\u00fdch osudoch aj \u0161peci\u00e1lnych potreb\u00e1ch jej synov a\u00a0\u017eivote na Slovensku <\/span><\/b><\/p><\/h1><\/div>

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V\u00fdchova det\u00ed je v\u017edy pln\u00e1 radosti aj sk\u00fa\u0161ok, ale ke\u010f do \u017eivota vst\u00fapia \u0161peci\u00e1lne potreby, ka\u017edodennos\u0165 sa men\u00ed na cestu pln\u00fa odhodlania, trpezlivosti a h\u013eadania rie\u0161en\u00ed. Mama Daniela vychov\u00e1va spolu s\u00a0man\u017eelom troch synov \u2013 jedn\u00e9ho s poruchou sluchu a dvoch s autizmom \u2013 a jej pr\u00edbeh je svedectvom o sile materinskej l\u00e1sky, o rozmanit\u00fdch osudoch i o podmienkach, ktor\u00e9 na Slovensku formuj\u00fa \u017eivot rod\u00edn s de\u0165mi so \u0161peci\u00e1lnymi potrebami. V rozhovore otvorene hovor\u00ed o v\u00fdzvach, ale aj o mal\u00fdch v\u00ed\u0165azstv\u00e1ch, ktor\u00e9 prin\u00e1\u0161aj\u00fa n\u00e1dej a in\u0161pir\u00e1ciu.<\/p>\n

Daniela m\u00e1 44 rokov a svoj \u017eivot naplno venuje rodine \u2013 je matkou na pln\u00fd \u00fav\u00e4zok a poberate\u013ekou opatrovate\u013esk\u00e9ho pr\u00edspevku. Jej man\u017eel Ras\u0165o pracuje v Slovenskom vodohospod\u00e1rskom podniku a spolu tvoria siln\u00fd t\u00edm, ktor\u00fd sa ka\u017ed\u00fd de\u0148 u\u010d\u00ed zvl\u00e1da\u0165 v\u00fdzvy a tie\u017e radosti rodi\u010dovstva. \u017dij\u00fa v malebnej dedinke Rudn\u00edk na Myjavsk\u00fdch kopaniciach, kde vychov\u00e1vaj\u00fa troch synov. Najstar\u0161\u00ed, 16-ro\u010dn\u00fd Jakubko, je vysokofunk\u010dn\u00fd autista s ment\u00e1lnou subnormou. Trin\u00e1s\u0165ro\u010dn\u00fd Tom\u00e1\u0161ko m\u00e1 autizmus s normointelektom a najmlad\u0161\u00ed, 4,5-ro\u010dn\u00fd Luk\u00e1\u0161ko, m\u00e1 stredne \u0165a\u017ek\u00fa poruchu sluchu, ktor\u00fa mu pom\u00e1haj\u00fa kompenzova\u0165 na\u010d\u00favacie pr\u00edstroje (NA). Jakubko miluje ly\u017eovanie, bicyklovanie a s nad\u0161en\u00edm sa venuje diamantov\u00e9mu ma\u013eovaniu. Tom\u00e1\u0161ko inklinuje sk\u00f4r k po\u010d\u00edta\u010dom, no rovnako r\u00e1d bicykluje, chod\u00ed na turistiku a u\u017e\u00edva si pl\u00e1vanie. Najmlad\u0161\u00ed Luk\u00e1\u0161ko sa s rados\u0165ou u\u010d\u00ed nov\u00e9 veci \u2013 zatia\u013e ho bav\u00ed v\u0161etko, vr\u00e1tane tanca. Navy\u0161e v\u0161etci traja bratia nav\u0161tevuj\u00fa hasi\u010dsk\u00fd kr\u00fa\u017eok, ktor\u00fd ich ve\u013emi te\u0161\u00ed, preto\u017ee sa pravidelne z\u00fa\u010dast\u0148uj\u00fa r\u00f4znych s\u00fa\u0165a\u017e\u00ed. Rodinka spolu rada cestuje, chod\u00ed do pr\u00edrody a\u00a0za\u017e\u00edva v\u0161elijak\u00e9 dobrodru\u017estv\u00e1.<\/p>\n

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Foto: Rodinka na cest\u00e1ch za dobrodru\u017estvami \u00a9Private + fotila: Katar\u00edna \u0160ev\u010d\u00edkov\u00e1<\/p>\n

Hoci na prv\u00fd poh\u013ead m\u00f4\u017ee \u017eivot tejto rodiny p\u00f4sobi\u0165 idylicky, v skuto\u010dnosti je nesmierne n\u00e1ro\u010dn\u00e9 vychov\u00e1va\u0165 troch synov s r\u00f4znymi diagn\u00f3zami. Ka\u017ed\u00fd z nich m\u00e1 svoj jedine\u010dn\u00fd pr\u00edbeh, svoje \u0161pecifick\u00e9 potreby aj v\u00fdzvy, ktor\u00e9 formuj\u00fa ka\u017edodennos\u0165 oboch rodi\u010dov.<\/p>\n

Ako uv\u00e1dza Dada, jej syn Jakubko bol u\u017e v materskej \u0161kole trochu in\u00fd ne\u017e jeho rovesn\u00edci: \u201e\u0164a\u017eko nadv\u00e4zoval kontakty, t\u00fa\u017eil by\u0165 stredobodom pozornosti, niekedy ubli\u017eoval ostatn\u00fdm de\u0165om. Po n\u00e1stupe do z\u00e1kladnej \u0161koly sa probl\u00e9my e\u0161te zv\u00fdraznili \u2013 pridali sa \u0165a\u017ekosti s\u00a0u\u010den\u00edm.\u201c Rodina preto za\u010dala nav\u0161tevova\u0165 porad\u0148u v Myjave[1]<\/a>, av\u0161ak po roku ich odporu\u010dili na diagnostiku pre podozrenie na autizmus. V roku 2018 bol Jakub v Autistickom centre Andreas[2]<\/a> v Bratislave diagnostikovan\u00fd ako vysokofunk\u010dn\u00fd autista. Pre mamu Dadu to bolo \u0165a\u017ek\u00e9 obdobie \u2013 trvalo rok, k\u00fdm dok\u00e1zala prija\u0165, \u017ee jej die\u0165a je in\u00e9. Pomocou behavior\u00e1lnej terapie a terapie hrou v Centre sa Jakubko postupne zlep\u0161oval. Nesk\u00f4r prest\u00fapil na Spojen\u00fa \u0161kolu v Myjave[3]<\/a>, kde na\u0161iel prostredie, v ktorom sa c\u00edti spokojne.<\/p>\n

Tom\u00e1\u0161ko mal od za\u010diatku probl\u00e9my s re\u010dou \u2013 do troch rokov takmer v\u00f4bec nerozpr\u00e1val, vedel poveda\u0165 len zop\u00e1r slov. V \u0161k\u00f4lke si najprv na\u0161iel kamar\u00e1tov, ale postupne ho rovesn\u00edci za\u010dali vylu\u010dova\u0165 z kolekt\u00edvu pre jeho odli\u0161nos\u0165. Pod\u013ea slov mamy bol ve\u013emi kontaktn\u00fd, r\u00e1d obj\u00edmal deti, \u010do im nevyhovovalo, a navy\u0161e mal extr\u00e9mne pomal\u00e9 pracovn\u00e9 tempo. Ako pred\u0161kol\u00e1k za\u010dal tie\u017e nav\u0161tevova\u0165 porad\u0148u v Myjave. Prv\u00e9 dva ro\u010dn\u00edky z\u00e1kladnej \u0161koly zvl\u00e1dal len s ve\u013ekou n\u00e1mahou \u2013 dom\u00e1ce \u00falohy p\u00edsali do neskor\u00fdch ve\u010dern\u00fdch hod\u00edn, \u010do vy\u010derp\u00e1valo cel\u00fa rodinu. Nakoniec bol odoslan\u00fd na diagnostiku do Spojenej \u0161koly v Myjave, kde sa potvrdil vysokofunk\u010dn\u00fd autizmus s normointelektom. Be\u017en\u00fa z\u00e1kladn\u00fa \u0161kolu nezvl\u00e1dal, a\u00a0pr\u00e1ve preto bol preraden\u00fd do Spojenej \u0161koly, kde v\u00a0tom \u010dase otvorili triedu pre deti s autizmom a normointelektom. Tam na\u0161iel vhodnej\u0161ie podmienky na vzdel\u00e1vanie.<\/p>\n

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Foto: Traja bratia tvoria spolu siln\u00fd t\u00edm \u00a9Private<\/p>\n

Najmlad\u0161\u00ed Luk\u00e1\u0161ko pri naroden\u00ed nepre\u0161iel skr\u00edningom sluchu, resp. OAE (otoakustick\u00fdch emisi\u00ed), ktor\u00e9 boli meran\u00e9 u\u017e v p\u00f4rodnici. Lek\u00e1ri najprv predpokladali, \u017ee v u\u0161k\u00e1ch m\u00f4\u017ee by\u0165 plodov\u00e1 voda, av\u0161ak opakovan\u00e9 merania boli ne\u00faspe\u0161n\u00e9. A ako to funguje?: Po\u010das nieko\u013ekomin\u00fatov\u00e9ho vy\u0161etrenia sa do u\u0161ka die\u0165a\u0165a vlo\u017e\u00ed mal\u00e1 sonda, ktor\u00e1 vy\u0161le zvukov\u00fd stimul. Ak sluch funguje spr\u00e1vne, vl\u00e1skov\u00e9 bunky vo vn\u00fatornom uchu (kochlei) sa podr\u00e1\u017edia a vy\u0161l\u00fa sp\u00e4tn\u00e9 zvuky \u2013 tzv. otoakustick\u00e9 emisie. Sonda ich zachyt\u00ed a v\u00fdsledok sa okam\u017eite zobraz\u00ed na pr\u00edstroji. V takom pr\u00edpade hovor\u00edme, \u017ee emisie s\u00fa \u201ev\u00fdbavn\u00e9\u201c a s vysokou pravdepodobnos\u0165ou je sluch die\u0165a\u0165a v poriadku. Pokia\u013e v\u0161ak sonda emisie nezachyt\u00ed \u2013 teda s\u00fa \u201enev\u00fdbavn\u00e9\u201c \u2013 m\u00f4\u017ee \u00eds\u0165 o prv\u00fd sign\u00e1l poruchy sluchu. Vtedy je potrebn\u00e9 vy\u0161etrenie zopakova\u0165, najnesk\u00f4r do jedn\u00e9ho mesiaca od prv\u00e9ho merania. Vy\u0161etrenie je zalo\u017een\u00e9 na poznan\u00ed, \u017ee vonkaj\u0161ie vl\u00e1skov\u00e9 bunky v kochlei vibruj\u00fa spont\u00e1nne, ale v\u00fdraznej\u0161ie reaguj\u00fa na zvuk prich\u00e1dzaj\u00faci zvonku. Vibr\u00e1cia nast\u00e1va iba vtedy, ak s\u00fa bunky zdrav\u00e9. Ak m\u00e1 die\u0165a norm\u00e1lny sluch alebo stratu men\u0161iu ne\u017e 30 \u2013 35 dB, pr\u00edstroj zachyt\u00ed emisie a v\u00fdsledok je \u201ePASS\u201c (vyhovel). Ak je strata sluchu v\u00e4\u010d\u0161ia ne\u017e 30 \u2013 35 dB, emisie sa neobjavia a v\u00fdsledok je \u201eREFER\u201c (nevyhovel). OAE dok\u00e1\u017ee r\u00fdchlo odhali\u0165 podozrenie na poruchu sluchu, av\u0161ak nezachyt\u00ed stratu men\u0161iu ne\u017e 30 \u2013 35 dB, ani po\u0161kodenie sluchov\u00e9ho nervu \u010di mozgov\u00fdch dr\u00e1h. U rizikov\u00fdch novorodencov alebo pri podozren\u00ed na neurologick\u00e9 po\u0161kodenie sa odpor\u00fa\u010da doplni\u0165 skr\u00edning pomocou AABR vy\u0161etrenia[4]<\/a>, ktor\u00e9 dok\u00e1\u017ee zachyti\u0165 aj tieto typy por\u00fach. OAE nie je mo\u017en\u00e9 vykona\u0165 u det\u00ed s atr\u00e9ziou vonkaj\u0161ieho zvukovodu (nevyvinut\u00fd zvukovod). Vy\u0161etrenie m\u00f4\u017ee by\u0165 ne\u00faspe\u0161n\u00e9 aj u zdrav\u00fdch det\u00ed, najm\u00e4 ak maj\u00fa kr\u00e1tko po p\u00f4rode vo zvukovode alebo strednom uchu tekutinu (plodov\u00fa vodu). Ak sa emisie nenameraj\u00fa v p\u00f4rodnici na jednom alebo oboch u\u0161k\u00e1ch, nasleduje kontrola pribli\u017ene o mesiac po prepusten\u00ed. Ak ani druh\u00e9 meranie nie je \u00faspe\u0161n\u00e9, je nevyhnutn\u00e9 absolvova\u0165 podrobnej\u0161ie vy\u0161etrenie \u2013 AABR, resp. objekt\u00edvne vy\u0161etrenie BERA[5]<\/a> \u2013 v centre pre diagnostiku por\u00fach sluchu[6]<\/a>, alebo ASSR.<\/p>\n

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Foto: Luk\u00e1\u0161kovi nevych\u00e1dzali OAE u\u017e ako b\u00e1b\u00e4tku \u00a9Private<\/p>\n

Ako trojmesa\u010dn\u00fd absolvoval Luk\u00e1\u0161ko vy\u0161etrenie OAE na Kram\u00e1roch (N\u00daDCH[7]<\/a>), kde v\u00fdsledky vy\u0161li zrazu v poriadku. O \u0161tyri mesiace nesk\u00f4r v\u0161ak rodinu kontaktovali z nemocnice s t\u00fdm, \u017ee pr\u00edstroj bol pokazen\u00fd a vy\u0161etrenie treba zopakova\u0165: \u201eLuk\u00e1\u0161ko mal vtedy pol roka a op\u00e4\u0165 nepre\u0161iel. Nasledovalo ASSR vy\u0161etrenie, ktor\u00e9 potvrdilo stredne \u0165a\u017ek\u00fa senzorineur\u00e1lnu poruchu sluchu,\u201c podot\u00fdka mama Dada.<\/p>\n

Pr\u00edstroj na vy\u0161etrenie otoakustick\u00fdch emisi\u00ed (OAE) sa m\u00f4\u017ee \u201epokazi\u0165\u201c najm\u00e4 technick\u00fdmi chybami \u2013 poruchou mikrof\u00f3nu, sondy, k\u00e1blov, softv\u00e9ru alebo kalibr\u00e1cie. V\u00fdsledkom s\u00fa n\u00e1sledne nespo\u013eahliv\u00e9 merania.<\/p>\n

V\u017edy je aj preto d\u00f4le\u017eit\u00e9, aby sa realizovalo objekt\u00edvne vy\u0161etrenie sluchu. Pri ASSR[8]<\/a> ide o komplexn\u00e9 diagnostick\u00e9 vy\u0161etrenie, ktor\u00e9 dok\u00e1\u017ee odhadn\u00fa\u0165 stupe\u0148 straty sluchu na r\u00f4znych frekvenci\u00e1ch \u2013 ur\u010d\u00ed, ak\u00e9 t\u00f3ny die\u0165a po\u010duje v n\u00edzkom, strednom \u010di vysokom p\u00e1sme. Podobne ako BERA, aj ASSR vych\u00e1dza z princ\u00edpu, \u017ee zvukov\u00fd podnet vyvol\u00e1va v mozgu odozvu \u2013 tzv. ust\u00e1len\u00e9 evokovan\u00e9 potenci\u00e1ly v mozgovom kmeni. Tie sa daj\u00fa zachyti\u0165 pomocou elektr\u00f3d umiestnen\u00fdch na hlavi\u010dke die\u0165a\u0165a. Po\u010das vy\u0161etrenia sa na u\u0161i die\u0165a\u0165a nasadia sl\u00fachadl\u00e1 alebo sa do zvukovodu vlo\u017e\u00ed mal\u00e1 sonda. Na \u010delo a za u\u0161i sa pripevnia elektr\u00f3dy, ktor\u00e9 sn\u00edmaj\u00fa mozgov\u00fa aktivitu. Na rozdiel od klikovej BERA, ASSR \u0161tandardne testuje \u0161tyri frekvencie (500 Hz, 1 000 Hz, 2 000 Hz a 4 000 Hz) a stimuly a\u017e do intenzity 120 dB. V\u010faka tomu poskytuje odhadovan\u00fd audiogram \u2013 grafick\u00e9 zn\u00e1zornenie sluchovej schopnosti die\u0165a\u0165a. Vy\u0161etrenie je mo\u017en\u00e9 vykona\u0165 u\u017e u doj\u010diat. Trv\u00e1 pribli\u017ene 40 min\u00fat, nie je bolestiv\u00e9, av\u0161ak vzh\u013eadom na jeho d\u013a\u017eku sa realizuje bu\u010f po\u010das prirodzen\u00e9ho sp\u00e1nku die\u0165a\u0165a, alebo v sed\u00e1cii (anest\u00e9zii).[9]<\/a><\/p>\n

Stredne \u0165a\u017ek\u00e1 senzorineur\u00e1lna porucha sluchu, ktor\u00fa m\u00e1 aj Luk\u00e1\u0161ko, znamen\u00e1, \u017ee \u010dlovek m\u00e1 stratu sluchu v rozsahu pribli\u017ene 40 a\u017e 70 decibelov. Ide o po\u0161kodenie vn\u00fatorn\u00e9ho ucha alebo sluchov\u00e9ho nervu, ktor\u00e9 sp\u00f4sobuje, \u017ee \u010dlovek m\u00e1 probl\u00e9m po\u010du\u0165 be\u017en\u00fa re\u010d, najm\u00e4 ak sa rozpr\u00e1va potichu alebo v hlu\u010dnom prostred\u00ed. \u010clovek s\u00edce dok\u00e1\u017ee zachyti\u0165 hlasnej\u0161ie zvuky, ale slab\u0161ie a stredne siln\u00e9 podnety mu unikaj\u00fa. V praxi to znamen\u00e1, \u017ee potrebuje zv\u00fd\u0161en\u00fa hlasitos\u0165 telev\u00edzora \u010di r\u00e1dia a m\u00e1 \u0165a\u017ekosti s komunik\u00e1ciou v skupine alebo pri \u0161ume. Lie\u010dba spo\u010d\u00edva najm\u00e4 v kompenz\u00e1cii \u2013 pou\u017e\u00edvan\u00ed kompenza\u010dn\u00fdch pom\u00f4cok, rehabilit\u00e1cii sluchu a\u00a0v logopedickej podpore.[10]<\/a><\/p>\n

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Luk\u00e1\u0161ko a\u00a0jeho cesta za zvukmi; fotila: Katar\u00edna \u0160ev\u010d\u00edkov\u00e1<\/p>\n

Nesk\u00f4r podst\u00fapil Luk\u00e1\u0161ko VRA vy\u0161etrenie a\u00a0mesiac na to, de\u0148 po prv\u00fdch narodenin\u00e1ch, dostal na\u010d\u00favacie pr\u00edstroje. Vizu\u00e1lne posilnen\u00e1 audiometria (Visual Reinforcement Audiometry \u2013 VRA) je \u0161peci\u00e1lne vy\u0161etrenie sluchu ur\u010den\u00e9 pre deti pribli\u017ene od \u0161iestich mesiacov do troch a\u017e \u0161tyroch rokov. V tomto obdob\u00ed e\u0161te nedok\u00e1\u017eu spo\u013eahlivo spolupracova\u0165 pri klasickej audiometrii, preto sa vyu\u017e\u00edva met\u00f3da zalo\u017een\u00e1 na prirodzenej reakcii die\u0165a\u0165a na zvuk. Po\u010das vy\u0161etrenia sed\u00ed die\u0165a spolu s rodi\u010dom v tichej miestnosti alebo audiokab\u00edne. Zo \u0161peci\u00e1lnych reproduktorov alebo sl\u00fachadiel sa p\u00fa\u0161\u0165aj\u00fa zvuky r\u00f4znych t\u00f3nov a hlasitost\u00ed. Ke\u010f die\u0165a na zvuk zareaguje (oto\u010d\u00ed hlavu alebo h\u013ead\u00e1 jeho zdroj) dostane vizu\u00e1lnu odmenu, napr\u00edklad rozsvieten\u00e9 farebn\u00e9 svetielko \u010di kr\u00e1tku anim\u00e1ciu. Takto si sp\u00e1ja zvuk s odmenou a opakovane reaguje, \u010do umo\u017e\u0148uje lek\u00e1rovi presne ur\u010di\u0165 jeho sluchov\u00fd prah. Vy\u0161etrenie sl\u00fa\u017ei na zistenie \u00farovne sluchu u ve\u013emi mal\u00fdch det\u00ed, pom\u00e1ha v\u010das odhali\u0165 poruchy sluchu, je nebolestiv\u00e9 i zauj\u00edmav\u00e9. Met\u00f3da VRA je vhodn\u00e1 pre deti, ktor\u00e9 e\u0161te nehovoria alebo nedok\u00e1\u017eu spolupracova\u0165. V\u010faka hravej forme ju v\u00e4\u010d\u0161ina det\u00ed vn\u00edma ako z\u00e1bavn\u00fa a umo\u017e\u0148uje objekt\u00edvne a spo\u013eahlivo zhodnoti\u0165 sluch u\u017e v ranom veku.[11]<\/a><\/p>\n

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Luk\u00e1\u0161ko s\u00a0bratom Tom\u00e1\u0161om; fotila: Katar\u00edna \u0160ev\u010d\u00edkov\u00e1<\/p>\n

Rodina podst\u00fapila s Luk\u00e1\u0161kom aj genetick\u00e9 testy, aby sa zistilo, \u010di jeho porucha sluchu nie je dedi\u010dn\u00e9ho p\u00f4vodu. V tak\u00fdchto pr\u00edpadoch sa naj\u010dastej\u0161ie vy\u0161etruje zn\u00e1ma patog\u00e9nna mut\u00e1cia c.35delG v g\u00e9ne GJB2, ktor\u00fd k\u00f3duje prote\u00edn konex\u00edn 26. Tento prote\u00edn je d\u00f4le\u017eit\u00fd pre spr\u00e1vnu funkciu buniek vn\u00fatorn\u00e9ho ucha, preto\u017ee zabezpe\u010duje prenos i\u00f3nov potrebn\u00fdch na tvorbu elektrick\u00fdch sign\u00e1lov. Ak je g\u00e9n po\u0161koden\u00fd, doch\u00e1dza k naru\u0161eniu komunik\u00e1cie medzi bunkami a v\u00fdsledkom m\u00f4\u017ee by\u0165 vroden\u00e1 alebo v\u010dasn\u00e1 porucha sluchu. Vy\u0161etrenie prebieha tak, \u017ee lek\u00e1r odoberie vzorku DNA (naj\u010dastej\u0161ie z\u00a0krvi). V laborat\u00f3riu sa DNA analyzuje pomocou molekul\u00e1rno-genetick\u00fdch met\u00f3d, ktor\u00e9 dok\u00e1\u017eu odhali\u0165 pr\u00edtomnos\u0165 mut\u00e1cie. Ak sa mut\u00e1cia c.35delG potvrd\u00ed, znamen\u00e1 to, \u017ee porucha sluchu m\u00e1 genetick\u00fd z\u00e1klad. V\u00fdsledky pom\u00e1haj\u00fa lek\u00e1rom lep\u0161ie pochopi\u0165 pr\u00ed\u010dinu poruchy, predpoveda\u0165 jej priebeh a rozhodn\u00fa\u0165 o \u010fal\u0161ej lie\u010dbe \u010di podpore (napr. na\u010d\u00favacie pr\u00edstroje, kochle\u00e1rne implant\u00e1ty). Poruchy sluchu m\u00f4\u017eu by\u0165 sp\u00f4soben\u00e9 r\u00f4znymi faktormi \u2013 od infekci\u00ed, cez komplik\u00e1cie pri p\u00f4rode a\u017e po genetick\u00e9 mut\u00e1cie, pri\u010dom mut\u00e1cia c.35delG v g\u00e9ne GJB2 patr\u00ed medzi naj\u010dastej\u0161ie genetick\u00e9 pr\u00ed\u010diny vrodenej nedosl\u00fdchavosti v Eur\u00f3pe. Testovanie pom\u00e1ha rodin\u00e1m z\u00edska\u0165 istotu, \u010di ide o dedi\u010dn\u00fa z\u00e1le\u017eitos\u0165, a poskytuje d\u00f4le\u017eit\u00e9 inform\u00e1cie aj pre bud\u00face pl\u00e1novanie rodiny.[12]<\/a> Luk\u00e1\u0161kovi v\u0161ak genetick\u00fa poruchu sluchu na z\u00e1klade tohto vy\u0161etrenia vyl\u00fa\u010dili.<\/p>\n

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Luk\u00e1\u0161ko so svojimi kompenza\u010dn\u00fdmi pom\u00f4ckami \u2013 na\u010d\u00favac\u00edmi pr\u00edstrojmi; fotila: Katar\u00edna \u0160ev\u010d\u00edkov\u00e1<\/p>\n

Luk\u00e1\u0161kovi a\u00a0jeho rodine od za\u010diatku pom\u00e1haj\u00fa viacer\u00ed odborn\u00edci. Ako tvrd\u00ed Daniela, jej rodine ve\u013emi pomohla hlavne surdop\u00e9dka Silvia Hovorkov\u00e1[13]<\/a>, ktorej s\u00fa dodnes v\u010fa\u010dn\u00ed. Moment\u00e1lne chod\u00ed Luk\u00e1\u0161ko aj do poradne pre deti s poruchou sluchu v Bratislave[14]<\/a>, kde sa mu venuje \u0161peci\u00e1lna pedagogi\u010dka a surdop\u00e9dka Mirka Tom\u00e1\u0161kov\u00e1. Surdop\u00e9dia je pritom odbor \u0161peci\u00e1lnej pedagogiky, ktor\u00fd sa zaober\u00e1 v\u00fdchovou, vzdel\u00e1van\u00edm a rozvojom os\u00f4b so sluchov\u00fdm postihnut\u00edm. Surdop\u00e9dia (alebo surdopedagogika) sa s\u00fastre\u010fuje na te\u00f3riu a prax rozvoja osobnosti, eduk\u00e1ciu a integr\u00e1ciu \u013eud\u00ed s\u00a0poruchou sluchu. Zah\u0155\u0148a tie\u017e diagnostick\u00e9 met\u00f3dy, \u0161peci\u00e1lne eduka\u010dn\u00e9 pr\u00edstupy, vyu\u017e\u00edvanie kompenza\u010dn\u00fdch pom\u00f4cok a podporu komunik\u00e1cie prostredn\u00edctvom posunkov\u00e9ho jazyka \u010di vizu\u00e1lnych met\u00f3d. Cie\u013eom je zlep\u0161i\u0165 kvalitu \u017eivota det\u00ed a\u00a0dospel\u00fdch s\u00a0poruchou sluchu a umo\u017eni\u0165 im plnohodnotn\u00e9 zapojenie sa do spolo\u010dnosti.[15]<\/a><\/p>\n

Ako uv\u00e1dza mama Dada, jej syn Luk\u00e1\u0161ko moment\u00e1lne komunikuje ve\u013emi dobre: \u201eM\u00e1 super slovn\u00fa z\u00e1sobu, len \u010dastokr\u00e1t je to nezrozumite\u013en\u00e9. Treba s n\u00edm st\u00e1le ve\u013ea pracova\u0165 a rozv\u00edja\u0165 ho, preto\u017ee kv\u00f4li poruche sluchu zaost\u00e1va v jemnej motorike a celkovo je pozadu pribli\u017ene o ten rok, po\u010das ktor\u00e9ho mu ch\u00fdbal zvuk ako tak\u00fd \u2013 k\u00fdm nedostal na\u010d\u00favacie pr\u00edstroje,\u201c zd\u00f4raz\u0148uje.<\/p>\n

Luk\u00e1\u0161ko preto nav\u0161tevuje i logop\u00e9diu v Starej Turej u MUDr. Koc\u00farikovej, ktor\u00e1 mu pom\u00e1ha s re\u010dou. Logop\u00e9dia je pritom pre deti s poruchou sluchu ve\u013emi d\u00f4le\u017eit\u00e1, preto\u017ee podporuje rozvoj re\u010di a jazyka, ktor\u00fd je u nich prirodzene spomalen\u00fd. Pom\u00e1ha im nau\u010di\u0165 sa spr\u00e1vne vyslovova\u0165 slov\u00e1, roz\u0161irova\u0165 slovn\u00fa z\u00e1sobu a lep\u0161ie porozumie\u0165 hovoren\u00e9mu. Z\u00e1rove\u0148 ich u\u010d\u00ed efekt\u00edvne komunikova\u0165 \u2013 \u010di u\u017e hovorenou re\u010dou, posunkami alebo kombinovan\u00fdmi met\u00f3dami. Bez logopedickej intervencie by sa u det\u00ed mohli objavi\u0165 \u010fal\u0161ie probl\u00e9my, napr\u00edklad oneskoren\u00fd kognit\u00edvny v\u00fdvin, \u0165a\u017ekosti v \u0161kole alebo soci\u00e1lna izol\u00e1cia. Logop\u00e9dia tie\u017e pom\u00e1ha de\u0165om vyu\u017e\u00edva\u0165 ich kompenza\u010dn\u00e9 pom\u00f4cky naplno, aby dok\u00e1zali lep\u0161ie spracova\u0165 zvuky a re\u010d. D\u00f4le\u017eitou s\u00fa\u010das\u0165ou je i podpora rodi\u010dov, ktor\u00ed sa u\u010dia, ako die\u0165a doma motivova\u0165 a rozv\u00edja\u0165 jeho komunika\u010dn\u00e9 schopnosti.[16]<\/a><\/p>\n

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Luk\u00e1\u0161ko si napriek poruche sluchu u\u017e\u00edva \u017eivot pln\u00fdmi d\u00fa\u0161kami; fotila: Katar\u00edna \u0160ev\u010d\u00edkov\u00e1<\/p>\n

Mama Dada \u010dasto zd\u00f4raz\u0148uje, \u017ee bez podpory man\u017eela Ras\u0165a by v\u0161etko zvl\u00e1dala ove\u013ea \u0165a\u017e\u0161ie. Stoj\u00ed pri nej v ka\u017edej situ\u00e1cii, pom\u00e1ha a spolu sa sna\u017eia vytv\u00e1ra\u0165 de\u0165om \u010do najlep\u0161ie podmienky. Aj ke\u010f maj\u00fa tri deti so zdravotn\u00fdm znev\u00fdhodnen\u00edm, ich rodina je pln\u00e1 l\u00e1sky, odhodlania a viery, \u017ee ka\u017ed\u00fd mal\u00fd krok vpred m\u00e1 obrovsk\u00fd v\u00fdznam. S\u00a0l\u00e1skou hovor\u00ed, \u017ee man\u017eel je st\u00e1lou oporou a pre chalanov par\u0165\u00e1kom, ale predov\u0161etk\u00fdm kamar\u00e1tom. \u201eZa\u010diatky boli \u0165a\u017ek\u00e9, ke\u010f sme sa dozvedeli o\u00a0diagn\u00f3zach, no podr\u017eali sme sa navz\u00e1jom. Na\u0161im rodinn\u00fdm mottom je, \u017ee nikdy nebolo tak zle, aby nemohlo by\u0165 e\u0161te hor\u0161ie. Ve\u013ea rod\u00edn je toti\u017e na tom ove\u013ea hor\u0161ie ako je t\u00e1 na\u0161a \u2013 \u017eia\u013e aj hor\u0161ie diagn\u00f3zy existuj\u00fa,\u201c pr\u00edzvukuje Daniela.<\/p>\n

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Foto: Ocino Ras\u0165o je celej rodine ve\u013ekou oporou \u00a9Private<\/p>\n

Osudy rod\u00edn, ktor\u00e9 maj\u00fa deti so zdravotn\u00fdm znev\u00fdhodnen\u00edm s\u00fa r\u00f4zne a\u00a0st\u00e1va sa i\u00a0to, \u017ee preru\u0161ia kontakty so \u0161ir\u0161ou rodinou, a\u00a0to najm\u00e4 pre nepochopenie situ\u00e1cie, bagatelizovanie alebo neprip\u00fa\u0161\u0165anie hendikepu. \u201eMoja mama so sestrou v\u00f4bec neakceptuj\u00fa zdravotn\u00e9 znev\u00fdhodnenia na\u0161ich synov a preto sme pre ich nepochopenie preru\u0161ili kontakty, \u017eia\u013e aj tak\u00e9to sa st\u00e1va,\u201c vysvet\u013euje Dada.<\/p>\n

Tak\u00e9to situ\u00e1cie s\u00fa pre rodiny mimoriadne bolestiv\u00e9, preto\u017ee okrem ka\u017edodenn\u00fdch n\u00e1rokov spojen\u00fdch so starostlivos\u0165ou o deti musia zvl\u00e1da\u0165 i emocion\u00e1lnu z\u00e1\u0165a\u017e z nedostatku podpory. Vtedy sa ukazuje, \u017ee najv\u00e4\u010d\u0161ou oporou b\u00fdvaj\u00fa priatelia, zn\u00e1mi a najm\u00e4 rodiny s podobn\u00fdm osudom, ktor\u00e9 dok\u00e1\u017eu poskytn\u00fa\u0165 pochopenie, praktick\u00e9 rady a pocit spolupatri\u010dnosti. Podporn\u00e9 skupiny, rodi\u010dovsk\u00e9 zdru\u017eenia \u010di komunitn\u00e9 centr\u00e1 vytv\u00e1raj\u00fa bezpe\u010dn\u00fd priestor, kde rodiny m\u00f4\u017eu zdie\u013ea\u0165 svoje pr\u00edbehy, vz\u00e1jomne sa povzbudzova\u0165 a h\u013eada\u0165 rie\u0161enia ka\u017edodenn\u00fdch probl\u00e9mov. V\u00fdznamn\u00fa \u00falohu zohr\u00e1vaj\u00fa aj organiz\u00e1cie, ktor\u00e9 sa venuj\u00fa rodin\u00e1m det\u00ed so zdravotn\u00fdm znev\u00fdhodnen\u00edm. V\u010faka tak\u00fdmto iniciat\u00edvam sa rodiny nec\u00edtia osamel\u00e9 a z\u00edskavaj\u00fa pocit, \u017ee ich sk\u00fasenos\u0165 m\u00e1 hodnotu.[17]<\/a><\/p>\n

Daniela je v\u0161ak v\u010fa\u010dn\u00e1 i\u00a0za to, \u017ee chalani ako s\u00farodenci sa maj\u00fa radi. Hlavne Tom\u00e1\u0161ko s Luk\u00e1\u0161kom sa spolu \u010dasto hraj\u00fa a ch\u00fdbaj\u00fa jeden druh\u00e9mu, ke\u010f spolu nie s\u00fa. Jakubko je zas rad\u0161ej s dospel\u00fdmi ako s de\u0165mi.<\/p>\n

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D\u00f4le\u017eit\u00e9 je, aby spolu dr\u017eala hlavne nukle\u00e1rna rodina; fotila: Katar\u00edna \u0160ev\u010d\u00edkov\u00e1<\/p>\n

Dada si v\u00a0rozhovore pos\u0165a\u017eovala i\u00a0na podmienky na Slovensku: \u201eV na\u0161ej krajine je ve\u013emi m\u00e1lo centier pre autistov, kde robia diagnostiku a vo ve\u013ea z nich s\u00fa vysok\u00e9 poplatky. Pre rodiny s die\u0165a\u0165om alebo s de\u0165mi so zdravotn\u00fdm znev\u00fdhodnen\u00edm je to \u010dasto ve\u013emi finan\u010dne n\u00e1ro\u010dn\u00e9. Taktie\u017e by mohlo by\u0165 u n\u00e1s viac centier pre deti s poruchou sluchu a\u00a0v\u00e4\u010d\u0161ie mno\u017estvo zabezpe\u010den\u00fdch kompenz\u00e1ci\u00ed\u201c podot\u00fdka.<\/p>\n

V\u00a0najbli\u017e\u0161ej dobe by napr\u00edklad chcela cez podporu \u00faradu pr\u00e1ce (\u00daPSVaR[18]<\/a>) zadov\u00e1\u017ei\u0165 pre Luk\u00e1\u0161ka Roger pen. Ide o bezdr\u00f4tov\u00fd mikrof\u00f3n, ktor\u00fd sa pou\u017e\u00edva ako doplnok k na\u010d\u00favac\u00edm pr\u00edstrojom. Je navrhnut\u00fd tak, aby pom\u00e1hal \u013eu\u010fom s\u00a0poruchou sluchu lep\u0161ie rozumie\u0165 re\u010di v hlu\u010dnom prostred\u00ed alebo na v\u00e4\u010d\u0161iu vzdialenos\u0165. Funguje tak, \u017ee zachyt\u00e1va hlas hovoriaceho a bezdr\u00f4tovo ho pren\u00e1\u0161a priamo do na\u010d\u00favacieho pr\u00edstroja. V\u010faka tomu je re\u010d zrozumite\u013enej\u0161ia aj v situ\u00e1ci\u00e1ch, kde by samotn\u00fd na\u010d\u00favac\u00ed pr\u00edstroj nesta\u010dil. Roger Pen sa pou\u017e\u00edva napr\u00edklad v \u0161kole, ke\u010f u\u010dite\u013e hovor\u00ed do mikrof\u00f3nu a die\u0165a po\u010duje jasne aj zo zadn\u00fdch lav\u00edc, alebo doma pri sledovan\u00ed telev\u00edzie \u010di telefonovan\u00ed. V\u00fdhodou je, \u017ee zariadenie sa automaticky prisp\u00f4sobuje hluku, je diskr\u00e9tne a kompatibiln\u00e9 s v\u00e4\u010d\u0161inou modern\u00fdch sluchov\u00fdch pom\u00f4cok.[19]<\/a><\/p>\n

V s\u00fa\u010dasnosti rie\u0161i Dada so synmi taktie\u017e viacer\u00e9 probl\u00e9my. Luk\u00e1\u0161ko moment\u00e1lne nav\u0161tevuje matersk\u00fa \u0161kolu v Hra\u0161nom, kde chod\u00ed iba 14 det\u00ed. Do \u0161k\u00f4lky chod\u00ed r\u00e1d, hoci m\u00e1 probl\u00e9my s komunik\u00e1ciou. Zauj\u00edmav\u00e9 je, \u017ee v tej istej \u0161k\u00f4lke je aj \u010fal\u0161\u00ed chlapec s poruchou sluchu, ktor\u00fd nos\u00ed NA, \u010do Luk\u00e1\u0161ovi pom\u00e1ha c\u00edti\u0165 sa menej osamelo. Napriek tomu v\u0161ak \u0161k\u00f4lka nez\u00edskala od \u0161t\u00e1tu podporu vo forme asistenta pedag\u00f3ga a rodina sa to preto bude sna\u017ei\u0165 rie\u0161i\u0165 zbierkou cez transparentn\u00e9 port\u00e1ly, aby si mohla asistenta zaplati\u0165 sama. Okrem toho realizuje i zbierku pre Jakubka[20]<\/a>, ktor\u00fd, odkedy vst\u00fapil do puberty, \u010del\u00ed v\u00e4\u010d\u0161\u00edm \u0165a\u017ekostiam, preto\u017ee nedok\u00e1zal s\u00e1m kontrolova\u0165 svoje pudy. Z tohto d\u00f4vodu mu boli predp\u00edsan\u00e9 hormon\u00e1lne lieky. \u017dia\u013e, tieto lieky s\u00fa moment\u00e1lne na Slovensku nedostupn\u00e9, a preto mus\u00ed rodina cestova\u0165 do zahrani\u010dia, kde s\u00fa ich z\u00e1soby obmedzen\u00e9 a z\u00e1rove\u0148 ve\u013emi drah\u00e9. Navy\u0161e slovensk\u00e1 pois\u0165ov\u0148a hrad\u00ed len ich minim\u00e1lnu \u010das\u0165.<\/p>\n

A\u00a0\u010do \u010dak\u00e1 chlapcov v\u00a0bud\u00facnosti? \u201eBud\u00faci \u0161kolsk\u00fd rok bude Luk\u00e1\u0161ko pred\u0161kol\u00e1k, a preto u\u017e za\u010d\u00edname postupne rie\u0161i\u0165 ot\u00e1zku \u0161koly. Radi by sme, aby nast\u00fapil do be\u017enej \u0161koly s podporou asistenta, ak to bude mo\u017en\u00e9. Jakubko tento rok ukon\u010d\u00ed z\u00e1kladn\u00fa \u0161kolu a \u010falej bude pokra\u010dova\u0165 v praktickej \u0161kole v Myjave. Tom\u00e1\u0161ko m\u00e1 u\u017e tie\u017e jasno \u2013 jeho ve\u013ek\u00fdm snom je sta\u0165 sa kadern\u00edkom a barberom. Moj\u00edm najv\u00e4\u010d\u0161\u00edm \u017eelan\u00edm je, aby sa moje deti vzh\u013eadom na svoj zdravotn\u00fd stav mali \u010do najlep\u0161ie. Sna\u017e\u00edme sa ich za\u010dle\u0148ova\u0165 do spolo\u010dnosti, ako to len ide, aby mohli \u017ei\u0165 plnohodnotn\u00fd \u017eivot,\u201c dod\u00e1va Daniela.<\/p>\n

A\u00a0\u010do odkazuje mama Dada ostatn\u00fdm? \u201eV\u0161etk\u00fdm rodi\u010dom a rodin\u00e1m det\u00ed so zdravotn\u00fdm znev\u00fdhodnen\u00edm, ktor\u00ed \u010delia podobn\u00fdm probl\u00e9mom, chcem odk\u00e1za\u0165, aby sa nevzd\u00e1vali. Tento boj m\u00e1 zmysel a stoj\u00ed za to \u2013 v na\u0161om pr\u00edpade to plat\u00ed dokonca trojn\u00e1sobne,\u201c uzatv\u00e1ra.<\/p>\n

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Foto: Pod d\u00e1\u017ednikom jednej rodiny \u00a9Private<\/p>\n

Pr\u00edbeh Dadinej rodiny ukazuje, \u017ee \u017eivot so zdravotn\u00fdm znev\u00fdhodnen\u00edm det\u00ed prin\u00e1\u0161a mno\u017estvo v\u00fdziev, ale aj silu a odhodlanie, ktor\u00e9 by si mo\u017eno inak rodi\u010dia ani neuvedomili. Ka\u017edodenn\u00fd boj o\u00a0zdravotn\u00e9 kompenz\u00e1cie, vzdelanie a prijatie v spolo\u010dnosti je n\u00e1ro\u010dn\u00fd, ale z\u00e1rove\u0148 d\u00e1va zmysel \u2013 preto\u017ee ide o bud\u00facnos\u0165 det\u00ed, ich \u0161\u0165astie a mo\u017enos\u0165 \u017ei\u0165 plnohodnotn\u00fd \u017eivot. Mama Dada svoj\u00edm odkazom pripom\u00edna, \u017ee hoci cesta nie je jednoduch\u00e1, nevzd\u00e1va\u0165 sa m\u00e1 v\u00fdznam. Podpora priate\u013eov, komun\u00edt \u010di rod\u00edn s podobn\u00fdm osudom dok\u00e1\u017ee posilni\u0165 n\u00e1dej a uk\u00e1za\u0165, \u017ee spolo\u010dn\u00e9 \u00fasilie prin\u00e1\u0161a v\u00fdsledky. Jej slov\u00e1 s\u00fa povzbuden\u00edm pre v\u0161etk\u00fdch rodi\u010dov, ktor\u00ed stoja pred podobn\u00fdmi prek\u00e1\u017ekami \u2013 \u017ee tento boj stoj\u00ed za to a \u017ee deti si zasl\u00fa\u017eia na\u0161u neochvejn\u00fa l\u00e1sku a podporu.<\/p>\n

Autor: Miroslava Zemanov\u00e1<\/p>\n

[1]<\/a> https:\/\/www.cppmyjava.sk\/<\/a><\/p>\n

[2]<\/a> https:\/\/andreas.sk\/<\/a><\/p>\n

[3]<\/a> https:\/\/szsmyjava.edupage.org\/<\/a><\/p>\n

[4]<\/a> AABR (Automated Auditory Brainstem Response, resp. vy\u0161etrenie sluchov\u00fdch kme\u0148ov\u00fdch potenci\u00e1lov): vy\u0161etrenie sluchu, ktor\u00e9 sa vyu\u017e\u00edva najm\u00e4 u novorodencov. Pri tomto teste sa die\u0165a\u0165u prilo\u017eia mal\u00e9 sl\u00fachadl\u00e1 a elektr\u00f3dy na hlavu. Do u\u0161\u00ed sa p\u00fa\u0161\u0165aj\u00fa kr\u00e1tke zvukov\u00e9 podnety, napr\u00edklad kliknutia alebo t\u00f3ny. Mozgov\u00fd kme\u0148 na tieto podnety reaguje elektrick\u00fdmi sign\u00e1lmi, ktor\u00e9 pr\u00edstroj zachyt\u00ed a vyhodnot\u00ed. Vy\u0161etrenie je \u00faplne bezbolestn\u00e9, r\u00fdchle a nevy\u017eaduje \u017eiadnu spolupr\u00e1cu zo strany die\u0165a\u0165a. V\u010faka tomu je vhodn\u00e9 u\u017e v prv\u00fdch d\u0148och \u017eivota. AABR sa pou\u017e\u00edva najm\u00e4 u det\u00ed, ktor\u00e9 patria do rizikov\u00fdch skup\u00edn, napr\u00edklad u pred\u010dasne naroden\u00fdch det\u00ed alebo pri komplik\u00e1ci\u00e1ch po\u010das p\u00f4rodu. V\u00fdhodou AABR oproti jednoduch\u00e9mu testu OAE je to, \u017ee dok\u00e1\u017ee zachyti\u0165 aj poruchy sluchov\u00e9ho nervu alebo mozgov\u00e9ho kme\u0148a, nielen vn\u00fatorn\u00e9ho ucha. V\u010faka tomu poskytuje presnej\u0161\u00ed obraz o tom, ako die\u0165a reaguje na zvuk.<\/p>\n

[5]<\/a> BERA (alebo ABR: Brainstem Evoked Response Audiometry, resp. vy\u0161etrenie kme\u0148ov\u00fdch evokovan\u00fdch potenci\u00e1lov): objekt\u00edvne vy\u0161etrenie sluchu, ktor\u00e9 meria reakciu sluchov\u00e9ho nervu a mozgov\u00e9ho kme\u0148a na zvukov\u00e9 podnety. Pri vy\u0161etren\u00ed sa pacientovi nasadia sl\u00fachadl\u00e1, cez ktor\u00e9 sa p\u00fa\u0161\u0165aj\u00fa kliky alebo t\u00f3ny. Na hlavu sa prilo\u017eia elektr\u00f3dy, ktor\u00e9 sn\u00edmaj\u00fa elektrick\u00fa aktivitu mozgov\u00e9ho kme\u0148a. Vy\u0161etruje sa ka\u017ed\u00e9 ucho zvl\u00e1\u0161\u0165. Test je neinvaz\u00edvny, bezbolestn\u00fd a nevy\u017eaduje akt\u00edvnu spolupr\u00e1cu, preto je vhodn\u00fd aj pre mal\u00e9 deti a novorodencov. V\u00fdhodou BERA oproti jednoduch\u00fdm skr\u00edningov\u00fdm met\u00f3dam je, \u017ee dok\u00e1\u017ee odhali\u0165 nielen stratu sluchu, ale aj poruchy nervovej dr\u00e1hy za vn\u00fatorn\u00fdm uchom. BERA sa vyu\u017e\u00edva pre kontrolu funkcie sluchovej dr\u00e1hy a odhalenie neurologick\u00fdch probl\u00e9mov, zatia\u013e \u010do ASSR sl\u00fa\u017ei na presn\u00e9 ur\u010denie sluchov\u00e9ho prahu pri r\u00f4znych frekvenci\u00e1ch.<\/p>\n

[6]<\/a> https:\/\/infosluch.sk\/1262\/skriningove-vysetrenie-sluchu-v-porodnici\/<\/a><\/p>\n

[7]<\/a> N\u00e1rodn\u00fd \u00fastav detsk\u00fdch chor\u00f4b v\u00a0Bratislave<\/p>\n

[8]<\/a> ASSR (Auditory Steady State Response, resp. ust\u00e1len\u00e9 evokovan\u00e9 potenci\u00e1ly): modern\u00e9 vy\u0161etrenie sluchu, ktor\u00e9 umo\u017e\u0148uje presne ur\u010di\u0165 sluchov\u00fd prah pri konkr\u00e9tnych frekvenci\u00e1ch. V\u010faka tomu je mo\u017en\u00e9 zostavi\u0165 audiogram aj u ve\u013emi mal\u00fdch det\u00ed alebo u pacientov, ktor\u00ed nespolupracuj\u00fa.<\/p>\n

[9]<\/a> https:\/\/infosluch.sk\/1274\/objektivne-vysetrenia-sluchu-v-centre\/<\/a><\/p>\n

[10]<\/a> https:\/\/www.medel.com\/sk\/about-hearing\/types-of-hearing-loss<\/a> ; https:\/\/www.widex.com\/sk-sk\/hearing-loss\/types\/sensorineural-hearing-loss\/<\/a> ; https:\/\/www.rehabilitace.info\/zajimavosti\/senzorineuralni-ztrata-sluchu-co-je-to-a-jak-se-leci\/<\/a><\/p>\n

[11]<\/a> https:\/\/www.foniatria.eu\/vy%C5%A1etrenia\/vra\/<\/a><\/p>\n

[12]<\/a> https:\/\/ghcgenetics.sk\/testy\/hluchota\/<\/a> ; https:\/\/www.vaselaboratore.cz\/seznam-vysetreni\/molekularni-biologie\/item\/connexin-26-35delg-gjb2-ar-dedicna-hluchota<\/a> ; https:\/\/www.fmed.uniba.sk\/fileadmin\/lf\/veda\/svoc\/SVOCprace2020\/27_Slobodova.pdf<\/a> ; https:\/\/onlinelibrary.wiley.com\/doi\/epdf\/10.1111\/ahg.12284<\/a><\/p>\n

[13]<\/a> https:\/\/infosluch.sk\/<\/a><\/p>\n

[14]<\/a> https:\/\/zsihrdlickova.edupage.org\/a\/centrum-specialno-pedagogickeho-poradenstva<\/a><\/p>\n

[15]<\/a> https:\/\/www.fedu.uniba.sk\/uploads\/media\/PSP_vybrane_kapitoly.pdf<\/a><\/p>\n

[16]<\/a> https:\/\/vudpap.sk\/wp-content\/uploads\/2022\/06\/Dieta-so-sluchovym-postihnutim.pdf<\/a> ; https:\/\/health.gov.sk\/Zdroje?\/Sources\/dokumenty\/SDTP\/standardy\/17-03-2021\/Narusena-komunikacna-schopnost-ako-symptom-poruch-sluchu.pdf<\/a> ; https:\/\/www.sluchzrak.fedu.uniba.sk\/wp-content\/uploads\/2022\/01\/prirucka-porucha-sluchu-def.pdf<\/a><\/p>\n

[17]<\/a> Napr. https:\/\/infosluch.sk\/<\/a> ; https:\/\/www.somsameucho.sk\/<\/a> ; https:\/\/www.platformarodin.sk\/<\/a><\/p>\n

[18]<\/a> \u00daPSVaR: \u00darad pr\u00e1ce, soci\u00e1lnych vec\u00ed a rodiny.<\/p>\n

[19]<\/a> https:\/\/www.phonakpro.com\/il\/en\/support\/product-support\/wireless-accessories\/roger-pen\/overview-roger-pen.html<\/a><\/p>\n

[20]<\/a> Jakubka a\u00a0n\u00e1kup liekov pre neho m\u00f4\u017eete finan\u010dne podpori\u0165 tu: https:\/\/donio.sk\/pomoc-jakubkovi-s-liekom-androcur-zo-zahranicia<\/a><\/p>\n<\/div><\/div><\/div><\/div><\/div><\/p>\n","protected":false},"excerpt":{"rendered":"

Rozhovor s mamou Dadou o rozmanit\u00fdch osudoch aj \u0161peci\u00e1lnych potreb\u00e1ch jej synov a \u017eivote na Slovensku <\/p>\n","protected":false},"author":8,"featured_media":33164,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[415],"tags":[],"class_list":["post-33163","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zivot-sk"],"yoast_head":"\nTraja synovia, tri v\u00fdzvy \u2013 sk\u00fasenos\u0165 mamy s v\u00fdchovou det\u00ed so \u0161peci\u00e1lnymi potrebami: jeden m\u00e1 stredne \u0165a\u017ek\u00fa poruchu sluchu a dvaja autizmus - Slovak<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/lifelonghearing.com\/sk\/traja-synovia-tri-vyzvy-skusenost-mamy-s-vychovou-deti-so-specialnymi-potrebami-jeden-ma-stredne-tazku-poruchu-sluchu-a-dvaja-autizmus\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Traja synovia, tri v\u00fdzvy \u2013 sk\u00fasenos\u0165 mamy s v\u00fdchovou det\u00ed so \u0161peci\u00e1lnymi potrebami: jeden m\u00e1 stredne \u0165a\u017ek\u00fa poruchu sluchu a dvaja autizmus - 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