{"id":33060,"date":"2025-08-21T08:16:21","date_gmt":"2025-08-21T08:16:21","guid":{"rendered":"https:\/\/lifelonghearing.com\/sk\/?p=33060"},"modified":"2025-08-22T07:13:41","modified_gmt":"2025-08-22T07:13:41","slug":"dieta-po-prekonani-choroby-s-tazkou-poruchou-sluchu-kompenzovanou-ki-a-jeho-zivot-na-slovensku-z-pohladu-rodica","status":"publish","type":"post","link":"https:\/\/lifelonghearing.com\/sk\/dieta-po-prekonani-choroby-s-tazkou-poruchou-sluchu-kompenzovanou-ki-a-jeho-zivot-na-slovensku-z-pohladu-rodica\/","title":{"rendered":"Die\u0165a po prekonan\u00ed choroby s \u0165a\u017ekou poruchou sluchu kompenzovanou KI a jeho \u017eivot na Slovensku z poh\u013eadu rodi\u010da"},"content":{"rendered":"

Rozhovor s\u00a0bojovn\u00ed\u010dkou Mirkou o\u00a0jej synovi Timotejkovi a\u00a0komplik\u00e1ci\u00e1ch, ktor\u00e9 u\u00a0neho viedli k\u00a0\u0165a\u017ekej strate sluchu<\/span><\/b><\/p><\/h1><\/div>

\u017divot s die\u0165a\u0165om, ktor\u00e9 prekonalo v\u00e1\u017enu chorobu a n\u00e1sledne \u010del\u00ed okrem in\u00e9ho aj \u0165a\u017ekej strate sluchu, je cestou plnou v\u00fdziev, ob\u00e1v, ale i ne\u010dakan\u00fdch v\u00ed\u0165azstiev. V\u00a0mnoh\u00fdch pr\u00edpadoch sa st\u00e1vaj\u00fa pomocou kochle\u00e1rne implant\u00e1ty (KI), ktor\u00e9 op\u00e4tovne dok\u00e1\u017eu otvori\u0165 svet zvukov. Rodi\u010dia sa n\u00e1sledne ocitaj\u00fa v \u00falohe sprievodcov, u\u010dite\u013eov, obhajcov a ne\u00fanavn\u00fdch podporovate\u013eov. \u010cl\u00e1nok pon\u00faka poh\u013ead na ka\u017edodenn\u00fd \u017eivot tak\u00e9hoto die\u0165a\u0165a v\u00a0slovensk\u00fdch podmienkach, a\u00a0to nie prostredn\u00edctvom \u0161tatist\u00edk, ale cez o\u010di matky, ktor\u00e1 pozn\u00e1 realitu najlep\u0161ie. <\/span><\/strong><\/p>\n<\/div>

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Foto: Mirka a jej rodina \u00a9Private<\/p><\/div><\/div><\/div><\/div><\/div><\/div><\/div>

Mirka je mamou dvoch det\u00ed, a\u00a0hoci je moment\u00e1lne na rodi\u010dovskej dovolenke, po\u010das nej na\u0161la aj v\u010faka svojej sestre cestu k\u00a0ekonomike i \u00fa\u010dtovn\u00edctvu a\u00a0za\u010dala sa v\u00a0tejto sf\u00e9re vzdel\u00e1va\u0165. Spolu s\u00a0man\u017eelom Luk\u00e1\u0161om, ktor\u00fd pracuje ako stavb\u00e1r, \u017eij\u00fa v\u00a0dedinke Koko\u0161ovce, p\u00e1r kilometrov od Pre\u0161ova. Spolu maj\u00fa 15-ro\u010dn\u00fa dc\u00e9rku Kamilku a druhoroden\u00e9ho Timotejka, ktor\u00fd m\u00e1 2,5\u00a0roka.\u00a0Ako tvrd\u00ed Mirka: \u201eNapriek komplikovan\u00e9mu osudu je to slnie\u010dko na\u0161ej rodiny. Najrad\u0161ej tr\u00e1vime \u010das vonku, \u010dasto chod\u00edme na prech\u00e1dzky do okolit\u00fdch lesov, alebo k\u00a0vodnej n\u00e1dr\u017ei, ktor\u00fa m\u00e1me za dedinou. Aj v\u010faka de\u0165om sme presne ten exteri\u00e9rov\u00fd typ rodiny, ktor\u00fd sa domov chod\u00ed najes\u0165 a\u00a0vyspa\u0165. \u010casto sa sch\u00e1dzame s\u00a0najbli\u017e\u0161ou rodinou a\u00a0tr\u00e1vime spolu vo\u013en\u00fd \u010das. Dokonca by som si tr\u00fafla poveda\u0165, \u017ee na\u0161e deti so sestrin\u00fdmi vych\u00e1dzaj\u00fa spolu sk\u00f4r ako s\u00farodenci, nie ako bratranci a\u00a0sestrenica. Taktie\u017e sa sna\u017e\u00edme pravidelne stret\u00e1va\u0165 so susedmi a\u00a0priate\u013emi, aby sme mohli zdie\u013ea\u0165 spolu nejak\u00e9 aktivity. Milujeme v\u00fdlety do okolia, \u010di u\u017e ide o zvieratk\u00e1, ihrisk\u00e1, prech\u00e1dzky, k\u00e1vi\u010dky, spolo\u010dn\u00e9 opeka\u010dky a\u00a0podobne,\u201c dod\u00e1va.<\/p>\n

A\u00a0ak\u00fd je Timotejkov pr\u00edbeh? Mirka prizn\u00e1va, \u017ee ke\u010f pri\u0161iel na svet, u\u017e ani ned\u00fafali: \u201eKamilka u\u017e od mali\u010dka dlho t\u00fa\u017eila po s\u00farodencovi, no ten neprich\u00e1dzal. Pam\u00e4t\u00e1m si to \u00faplne presne, ako sme jej na Ve\u013ek\u00fa noc povedali prekvapenie a\u00a0plakali sme cel\u00e1 rodina. Timotejko sa narodil koncom novembra a v be\u017en\u00fdch veciach bol \u00faplne uk\u00e1\u017ekov\u00fd. Takmer vo v\u0161etk\u00fdch tabu\u013ek\u00e1ch napredoval, bol neskuto\u010dne obratn\u00fd, siln\u00fd, zdrav\u00fd chlap\u010dek. No ke\u010f mal 10 mesiacov a vr\u00e1tili sme sa z\u00a0v\u00edkendov\u00e9ho pobytu, u\u017e\u00a0v pondelok r\u00e1no sme utekali k\u00a0detskej lek\u00e1rke, preto\u017ee mal teplotu 40,5 \u00b0C. Zatia\u013e \u010do sme \u010dakali na o\u0161etrenie, syn sa kompletne vyh\u00e1dzal vyr\u00e1\u017ekami, ktor\u00e9 paradoxne zmizli sk\u00f4r, ne\u017e sme vy\u0161li s\u00a0ambulancie. Prvotn\u00e1 diagn\u00f3za bola: siedma choroba.\u201c<\/p>\n

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Foto: Timotejko e\u0161te pred zdravotn\u00fdmi komplik\u00e1ciami \u00a9Private<\/p><\/div>\n

Siedma choroba naz\u00fdvan\u00e1 aj \u201enoha-ruka-\u00fasta\u201c sa vyskytuje hlavne v lete a na jese\u0148. Objavuje sa pri nej zv\u00fd\u0161en\u00e1 teplota a\u017e hor\u00fa\u010dka, ale tie\u017e z\u00e1vrat, pocit na vracanie, boles\u0165 kon\u010dat\u00edn, brucha a boles\u0165 v hrdle, ktor\u00e1 m\u00f4\u017ee by\u0165 tak intenz\u00edvna, \u017ee s\u0165a\u017euje preh\u013atanie. Na sliznici v \u00fastach a na jazyku sa za\u010dn\u00fa tvori\u0165 p\u013euzgieriky, ktor\u00e9 sa menia v bolestiv\u00e9 vriedky vyzeraj\u00face ako afty. Potom sa na dlaniach a chodidl\u00e1ch objavia p\u013euzgieriky a vyr\u00e1\u017eka. Ojedinele sa m\u00f4\u017eu objavi\u0165 komplik\u00e1cie vo forme z\u00e1palu p\u013e\u00fac, z\u00e1palu mozgov\u00fdch bl\u00e1n alebo z\u00e1palu srdcov\u00e9ho svalu (Hor\u00e1kov\u00e1, 2024[1]<\/a>).<\/p>\n

Ako uv\u00e1dza Mirka, \u00fadajne na toto ochorenie dostali potrebn\u00e9 sirupy a\u00a0i\u0161li domov obozn\u00e1men\u00ed s\u00a0pokynmi: \u201eNa\u0161a doktorka akur\u00e1t odch\u00e1dzala na dovolenku, tak\u017ee sme dostali kontakt na zastupuj\u00facu. Ke\u010f teploty po p\u00e1r d\u0148och neustupovali a\u00a0Timotejovi nebolo v\u00f4bec lep\u0161ie, vybrali sme sa skonzultova\u0165 jeho stav k\u00a0zastupuj\u00facej pediatri\u010dke. Asi ani ve\u013emi nechcem opisova\u0165, \u010do sme tam za\u017eili, preto\u017ee si v\u00e1\u017eim ka\u017ed\u00e9ho lek\u00e1ra a\u00a0hlavne s\u00fa to \u013eudia, ktor\u00ed m\u00f4\u017eu ma\u0165 aj hor\u0161ie dni... Pokra\u010dovali sme \u010falej v\u00a0lie\u010dbe, ale ke\u010f sme videli, \u017ee sa nikde nepos\u00favame a\u00a0tie teploty neklesali do norm\u00e1lneho stavu, kontaktovala som svoju lek\u00e1rku a\u00a0t\u00e1 n\u00e1s odoslala rovno do detskej nemocnice,\u201c dod\u00e1va.<\/p>\n

V\u00a0nemocnici absolvoval Timotejko z\u00e1kladn\u00e9 vy\u0161etrenia, odoslali ho domov s\u00a0antibiotikami a\u00a0kontrolou na druh\u00fd de\u0148 u\u00a0detskej lek\u00e1rky. V\u00a0te\u0148 de\u0148 mu prv\u00fdkr\u00e1t po 13 d\u0148och klesla teplota pod 38,5 \u00b0C. N\u00e1sledne s\u00a0n\u00edm chodili rodi\u010dia e\u0161te nasleduj\u00facich p\u00e4\u0165 dn\u00ed k\u00a0pediatri\u010dke na injekcie a\u00a0kontroly. Cel\u00e9 to trvalo pribli\u017ene tri t\u00fd\u017edne, ale Timotejko sa z\u00a0choroby dost\u00e1val ve\u013emi dlho, preto\u017ee v\u00a0\u010dase ke\u010f mal hor\u00fa\u010dky, boli dni, kedy po\u010das cel\u00e9ho d\u0148a iba na p\u00e1r min\u00fat otvoril o\u010di. K\u0155menie a\u00a0pod\u00e1vanie tekut\u00edn prebiehalo pomocou strieka\u010diek po mal\u00fdch d\u00e1vkach, aby sa neudusil.<\/p>\n

\u201eKe\u010f sa n\u00e1m ho podarilo dosta\u0165 do stavu, \u017ee u\u017e bol cez de\u0148 hore, museli sme ho nau\u010di\u0165 v\u0161etko odznova. Nevedel sedie\u0165, nie to e\u0161te st\u00e1\u0165 na n\u00f4\u017ekach, bol slab\u00fd, nechytil si ani do r\u00fa\u010dky svoju ob\u013e\u00faben\u00fa hra\u010dku. Vtedy pri\u0161li prv\u00e9 podozrenia, \u017ee nebude v\u0161etko v\u00a0poriadku a\u00a0preto som vyh\u013eadala op\u00e4\u0165 pomoc na\u0161ej lek\u00e1rky. Vysvetlila som jej, \u017ee Timotejko v\u00f4bec nereaguje na podnety, nevl\u00e1dze sa h\u00fdba\u0165 a\u00a0podobne. Vyslala n\u00e1s asi do \u0161tyroch r\u00f4znych ambulanci\u00ed, aby sme ni\u010d nezanedbali. V\u00a0Pre\u0161ove a\u00a0Ko\u0161iciach sme si pre\u0161li piatimi r\u00f4znymi ORL ambulanciami a\u00a0v\u0161ade n\u00e1s odkazovali iba na za\u013eahnutie v\u00a0u\u0161iach, alebo ho ozna\u010dovali za \u201enespolupracuj\u00face die\u0165a\u201c. Dokonca v\u00a0jednej z\u00a0ambulanci\u00ed na m\u0148a po telef\u00f3ne vysko\u010dila sestri\u010dka, \u017ee \u010do od nej vlastne chcem, ke\u010f mu pri p\u00f4rode boli roben\u00e9 skr\u00edningy na u\u0161i a\u00a0vy\u0161li v\u00a0poriadku. \u00a0Darmo som vysvet\u013eovala, \u017ee prekonal v\u00edrusov\u00e9 ochorenie, hoci vtedy sme e\u0161te ani my nevedeli ak\u00e9,\u201c roz\u010du\u013euje sa Mirka.<\/p>\n

Av\u0161ak realitou je, \u017ee aj u\u00a0die\u0165a\u0165a, ktor\u00e9 kedysi vyhovelo krit\u00e9ri\u00e1m novorodeneck\u00e9ho skr\u00edningu sluchu, sa m\u00f4\u017ee nesk\u00f4r objavi\u0165 porucha sluchu (OZ Infosluch, 2025[2]<\/a>). V pr\u00edpade prevencie z\u00edskan\u00fdch por\u00fach sluchu v detskom veku mo\u017eno medzi preventabiln\u00e9 pr\u00ed\u010diny t\u00fdchto por\u00fach zaradi\u0165 okrem in\u00e9ho pr\u00e1ve infekcie ako s\u00fa pr\u00edu\u0161nice, os\u00fdpky, rubeola, meningit\u00edda, cytomegalov\u00edrusov\u00e1 infekcia \u010di chronick\u00fd z\u00e1pal stredn\u00e9ho ucha (31 % pr\u00edpadov) (WHO, 2025[3]<\/a>; Kulich, Radi\u010dov\u00e1, 2021[4]<\/a>).<\/p>\n

Ako podot\u00fdka Mirka, a\u017e ke\u010f sa im podarilo dosta\u0165 sa do DFN KE na objekt\u00edvne meranie BERA a\u00a0n\u00e1sledne na magnetick\u00fa rezonanciu, vy\u0161li vtedy 18-mesa\u010dn\u00e9mu Timotejkovi pri predopera\u010dnom vy\u0161etren\u00ed z\u00a0krvi Covid-19 a\u00a0mumps. Tak\u017ee sa po takmer polroku dozvedeli kone\u010dne odpove\u010f na to, \u010do sa stalo s\u00a0ich die\u0165a\u0165om.<\/p>\n

BERA (Brainstem Evoked Response Audiometry) je pod\u013ea Jakub\u00edkovej (2008[5]<\/a>) \u201evy\u0161etrovacia met\u00f3da na ur\u010denie prahu sluchu bez frekven\u010dnej \u0161pecificity, sn\u00edman\u00edm sluchov\u00fdch evokovan\u00fdch potenci\u00e1lov z\u00a0mozgov\u00e9ho kme\u0148a. Zvukov\u00e9 stimuly s\u00fa kratu\u010dk\u00e9 impulzy, kliky. V\u00fdsledok BERA ur\u010d\u00ed prah sluchu bez frekven\u010dnej \u0161pecificity.\u201c<\/p>\n

Odborn\u00edci taktie\u017e poukazuj\u00fa na n\u00e1hlu senzorineur\u00e1lnu stratu sluchu s\u00favisiacu s Covid-19 u det\u00ed, pri\u010dom progn\u00f3za \u00fazko s\u00favis\u00ed s \u010dasom za\u010datia lie\u010dby. Kombin\u00e1cia glukokortikoidov, intratympanick\u00fdch injekci\u00ed dexametaz\u00f3nu a hyperbarickej oxygenoterapie m\u00f4\u017ee by\u0165 \u00fa\u010dinn\u00e1 pri lie\u010dbe tejto straty sluchu s\u00favisiacej s Covid-19 u\u00a0det\u00ed (Chrysouli a\u00a0kol., 2023[6]<\/a>).<\/p>\n

Taktie\u017e mumps je vysoko n\u00e1kazliv\u00e9 v\u00edrusov\u00e9 ochorenie, ktor\u00e9 v\u0161ak prim\u00e1rne postihuje slinn\u00e9 \u017e\u013eazy. Po\u010diato\u010dn\u00e9 pr\u00edznaky zah\u0155\u0148aj\u00fa hor\u00fa\u010dku, bolesti svalov, \u00fanavu a stratu chuti do jedla. N\u00e1sledne sa stav zhor\u0161uje, ke\u010f opuch slinn\u00fdch \u017eliaz sp\u00f4sobuje citliv\u00fa a opuchnut\u00fa \u010de\u013eus\u0165 a l\u00edca. Mumps \u010dasto vedie ku komplik\u00e1ci\u00e1m ako s\u00fa encefalit\u00edda a meningit\u00edda. V\u00edrus m\u00f4\u017ee tie\u017e infikova\u0165 vn\u00fatorn\u00e9 ucho a po\u0161kodi\u0165 sluch. Klinick\u00fd prieskum NCBI ukazuje, \u017ee mumps je naj\u010dastej\u0161ou pr\u00ed\u010dinou jednostrannej z\u00edskanej senzorineur\u00e1lnej hluchoty (Hoffmann, 2023[7]<\/a>).<\/p>\n

Ako uv\u00e1dza Mirka, v\u00fdsledky meran\u00ed v\u00a0nark\u00f3ze boli jasn\u00e9: \u201eObojstrann\u00e1 strata sluchu. Timotej nereagoval ani na viac ako 100 dB. \u010ci\u017ee na hranici praktickej hluchoty. S\u00a0odstupom ani neviem poveda\u0165 ako sme mohli zvl\u00e1dnu\u0165 nasleduj\u00face dni, preto\u017ee u\u00a0n\u00e1s doma zavl\u00e1dol sm\u00fatok, sklamanie, bezn\u00e1dej a\u00a0pla\u010d,\u201c trpko kon\u0161tatuje.<\/p>\n

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Foto: Timotejko u\u017e s na\u010d\u00favac\u00edmi pr\u00edstrojmi \u00a9Private<\/p><\/div>\n

Hoci Timotejko do dvoch t\u00fd\u017ed\u0148ov od diagnostiky dostal na\u010d\u00favacie pr\u00edstroje (NA) na obe u\u0161i, tie mu v\u0161ak pod\u013ea meran\u00ed neprin\u00e1\u0161ali \u017eiaden \u00fa\u017eitok, a to pozorovali aj jeho rodi\u010dia. Ani postupne, pri najhlasnej\u0161om nastaven\u00ed, nekompenzovali dostato\u010dne sluch (cca 90 dB, pri\u010dom re\u010d je na \u00farovni 25 \u2013 50 dB).Na ot\u00e1zku, ako si zvykol na na\u010d\u00fava\u010diky, Mirka s\u00a0\u00fasmevom odpoved\u00e1 \u017ee Timotejka cel\u00fd de\u0148 vozili vo f\u00fariku na dvore, aby bol zamestnan\u00fd t\u00fdm, \u017ee sa nie\u010doho dr\u017e\u00ed a nestrh\u00e1val si NA z u\u0161\u00ed.<\/p>\n

Ako podot\u00fdka Mirka, po diagnostike i\u0161lo v\u0161etko tak r\u00fdchlo, \u017ee tam ani nebol priestor na v\u00e1hanie alebo rozhodovanie, \u010di \u00eds\u0165 do kochle\u00e1rnej implant\u00e1cie. Ako tvrd\u00ed, ka\u017ed\u00fd rodi\u010d by urobil v\u0161etko pre svoje die\u0165a: \u201ePani prim\u00e1rka n\u00e1s po poslednom meran\u00ed s\u00a0NA odporu\u010dila na proces schva\u013eovania KI, pri\u010dom oper\u00e1cia bola uskuto\u010dnen\u00e1 dva t\u00fd\u017edne pred Timotejkov\u00fdmi druh\u00fdmi narodeninami. Prim\u00e1rka vysvetlila, \u010do v\u0161etko bude nasledova\u0165 a\u00a0my sme i\u0161li a\u00a0vybavovali, akceptovali vy\u0161etrenia a\u00a0dohadovali term\u00edny. Najhor\u0161ie bolo vybavi\u0165 MR a\u00a0CT. Pam\u00e4t\u00e1m si, ako som sa do telef\u00f3nu doslova vyhr\u00e1\u017eala pani sestri\u010dke, ktor\u00e1 bola na druhej strane telef\u00f3nnej linky, \u017ee ak mi ned\u00e1 \u010do najskor\u0161\u00ed mo\u017en\u00fd term\u00edn, tak ja si vezmem stan a\u00a0budem im stanova\u0165 na oddelen\u00ed, a\u017e k\u00fdm mi neo\u0161etria die\u0165a. Lebo ono nie je probl\u00e9m n\u00e1js\u0165 term\u00edn, ale na v\u00fdchode je probl\u00e9m, aby v\u00e1s v\u00f4bec chceli o\u0161etri\u0165, obzvl\u00e1\u0161\u0165 v \u010dasovej tiesni. V\u00fdhovorky ako: \u201edeti berieme od 6 rokov\u201c s\u00fa lep\u0161ie, ako poveda\u0165: \u201emus\u00edme zabezpe\u010di\u0165 anest\u00e9ziol\u00f3ga, aby mohol uspa\u0165 die\u0165a\u201c,\u201c s\u0165a\u017euje sa Mirka na pr\u00edstup niektor\u00fdch in\u0161tit\u00faci\u00ed.<\/p>\n

Magnetick\u00e1 rezonancia potvrdila, \u017ee sluchov\u00fd nerv je v poriadku a Timotej bol vhodn\u00fdm kandid\u00e1tom na KI, av\u0161ak zistili sa tie\u017e zmeny na mozgu a\u00a0CT uk\u00e1zalo skostnatenie slim\u00e1ka (kochley) v\u00a0pravom uchu. \u201eVedeli sme, \u017ee je mo\u017en\u00e9 implantova\u0165 aj tak\u00fdto pr\u00edpad, ale ani lek\u00e1ri nevedeli, ako to bude,\u201c podot\u00fdka Mirka.<\/p>\n

Na Slovensku sa kochle\u00e1rna implant\u00e1cia pri stavoch vyvol\u00e1vaj\u00facich meningit\u00eddu u det\u00ed (ktorej m\u00f4\u017ee predch\u00e1dza\u0165 i mumps) indikuje \u010do najsk\u00f4r, \u010dasto aj okam\u017eite po diagnostikovan\u00ed \u0165a\u017ekej straty sluchu, pr\u00e1ve kv\u00f4li riziku osifik\u00e1cie slim\u00e1ka (skostnatenia kochley), ktor\u00e1 m\u00f4\u017ee znemo\u017eni\u0165 alebo v\u00fdrazne s\u0165a\u017ei\u0165 zavedenie elektr\u00f3dy do vn\u00fatorn\u00e9ho slim\u00e1ka. Meningit\u00edda m\u00f4\u017ee sp\u00f4sobi\u0165 r\u00fdchlu osifik\u00e1ciu slim\u00e1ka \u2013 niekedy u\u017e do nieko\u013ek\u00fdch t\u00fd\u017ed\u0148ov po infekcii. V\u010dasn\u00e1 implant\u00e1cia zvy\u0161uje \u0161ancu na \u00faspe\u0161n\u00fa stimul\u00e1ciu sluchov\u00e9ho nervu a rozvoj re\u010di (Ministerstvo zdravotn\u00edctva Slovenskej republiky, 2025[8]<\/a>).<\/p>\n

\u201eOsifik\u00e1cia kochley nie je kontraindik\u00e1ciou kochle\u00e1rnej implant\u00e1cie, ke\u010f\u017ee bipol\u00e1rne bunky ganglion spirale pre\u017e\u00edvaj\u00fa, \u0165a\u017e\u0161ia je v\u0161ak inzercia elektr\u00f3dy. Preto tieto zmeny musia by\u0165 pri zobrazen\u00ed d\u00f4sledne pop\u00edsan\u00e9, aby sa zvolila vhodn\u00e1 elektr\u00f3da na inzerciu, pr\u00edpadne modifikovan\u00fd pr\u00edstup kochleost\u00f3mie\u201c (Sl\u00e1vikov\u00e1 a\u00a0kol., 2011[9]<\/a>).<\/p>\n

Zachovan\u00e1 funkcia sluchov\u00e9ho nervu, ako bolo spomenut\u00e9, je pritom z\u00e1kladnou podmienkou kochle\u00e1rnej implant\u00e1cie. A ako funguje tak\u00fd kochle\u00e1rny implant\u00e1t? Pri hluchote sp\u00f4sobenej po\u0161koden\u00edm kochley a zachovan\u00fdm sluchov\u00fdm nervom mo\u017eno elektrickou stimul\u00e1ciou sluchov\u00e9ho nervu vyvola\u0165 sluchov\u00fd vnem. KI t\u00fdmto sp\u00f4sobom nahr\u00e1dza nefunk\u010dn\u00e9 vl\u00e1skov\u00e9 bunky kochley a\u00a0elektrick\u00fdmi stimulmi priamo dr\u00e1\u017edi pre\u017e\u00edvaj\u00face neur\u00f3ny sluchov\u00e9ho nervu. K vonkaj\u0161ej \u010dasti, ktor\u00e1 sa nos\u00ed na hlave (podobne ako NA) patr\u00ed re\u010dov\u00fd procesor a na \u0148om mikrof\u00f3n i vonkaj\u0161ia cievka, resp. vysiela\u010d. Vn\u00fatorn\u00e1 \u010das\u0165 KI je implantovan\u00e1 pri chirurgickom v\u00fdkone do sp\u00e1nkovej kosti a tvor\u00ed ju vn\u00fatorn\u00e1 cievka \u2013 prij\u00edma\u010d a elektr\u00f3da, resp. syst\u00e9m elektr\u00f3d. Re\u010d a in\u00e9 zvuky okolia s\u00fa zachyten\u00e9 mikrof\u00f3nom, ktor\u00fd premie\u0148a akustick\u00e9 impulzy na elektrick\u00e9 sign\u00e1ly. Tieto sign\u00e1ly z mikrof\u00f3nu sa ved\u00fa do re\u010dov\u00e9ho procesora, ktor\u00fd ich spracuje na k\u00f3dovan\u00fa inform\u00e1ciu. Stimuly z re\u010dov\u00e9ho procesora smeruj\u00fa k vysielacej cievke a z nej sa sign\u00e1l elektromagnetickou indukciou dostane do vn\u00fatornej \u010dasti implant\u00e1tu. Sluchov\u00fd nerv ako elektrick\u00fd vodi\u010d vedie elektrick\u00fd sign\u00e1l do sluchov\u00fdch centier, kde sa rozozn\u00e1va ako zvukov\u00fd vnem. Ako tvrdia Kab\u00e1tov\u00e1 a Profant (2007[10]<\/a>), \u201ev s\u00fa\u010dasnosti je z medic\u00ednskeho h\u013eadiska kochle\u00e1rna implant\u00e1cia overen\u00e1 klinick\u00e1 met\u00f3da, ktor\u00e1 r\u00f4znym skupin\u00e1m nepo\u010duj\u00facich prin\u00e1\u0161a r\u00f4zny sluchov\u00fd zisk \u2013 od zlep\u0161enia schopnosti odzera\u0165, a\u017e po mo\u017enos\u0165 dorozumieva\u0165 sa sluchovou cestou bez odzerania a\u00a0telefonova\u0165.\u201c<\/p>\n

V\u00a0tom \u010dase za\u010dala Mirka h\u013eada\u0165 inform\u00e1cie, \u0161tudova\u0165 si v\u0161etky mo\u017en\u00e9 rizik\u00e1, ale tie\u017e n\u00e1sledky \u010do sa stane, keby sa rozhodli pre Timotejka nepodst\u00fapi\u0165 kochle\u00e1rnu implant\u00e1ciu. Ako tvrd\u00ed, v\u00a0tomto obdob\u00ed jej ve\u013emi pomohla logopedi\u010dka, ktor\u00e1 im umo\u017enila stretnutie s\u00a0rodinou implantovan\u00e9ho chlapca. \u201eKe\u010f som sa na neho pozrela prv\u00fdkr\u00e1t, prv\u00e9 \u010do mi napadlo, bolo, \u201eve\u010f tomu die\u0165a\u0165u ni\u010d nech\u00fdba\u201c. Pochopila som, \u017ee KI nie s\u00fa pre \u017eivot die\u0165a\u0165a \u017eiadna prek\u00e1\u017eka a\u00a0pochopila som, \u017ee to bude tie\u017e na\u0161a cesta. Aj ja mus\u00edm raz po\u010du\u0165 nekone\u010dn\u00e9 ot\u00e1zky svojho syna,\u201c pousmiala sa Mirka.<\/p>\n

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Foto: Timotejko v nemocnici po obojstrannej kochle\u00e1rnej implant\u00e1cii \u00a9Private<\/p><\/div>\n

Na ot\u00e1zku, \u010di je nie\u010do, \u010do by v\u00a0diagnostike zefekt\u00edvnila, m\u00e1 Mirka jasn\u00fa odpove\u010f: jednozna\u010dne dostupnos\u0165 vy\u0161etren\u00ed a dostupnos\u0165 odborn\u00e9ho person\u00e1lnu. \u201eJe neuverite\u013en\u00e9, \u017ee v\u00a021. storo\u010d\u00ed musia \u013eudia doch\u00e1dza\u0165 desiatky a\u017e stovky kilometrov. V\u010dasn\u00e1 diagnostika je najpodstatnej\u0161ia a\u00a0taktie\u017e informovanos\u0165. Det\u00ed s\u00a0poruchami sluchu prib\u00fada ka\u017ed\u00fd rok a\u00a0vedomos\u0165 ostala niekde pozadu. V\u0161etk\u00fdm rodi\u010dom a\u00a0de\u0165om prajem, aby empatia person\u00e1lu nemocn\u00edc a\u00a0ambulanci\u00ed nebola prekvapen\u00edm, ale \u0161tandardom. Tak, ako sme to za\u017eili my pri pani prim\u00e1rke MUDr. Boldi\u017e\u00e1rovej a\u00a0jej t\u00edme,\u201c vyzdvihuje Mirka pozit\u00edvny pr\u00edstup.<\/p>\n

A\u00a0ako sa Timotejkovi dar\u00ed dnes? \u010co ho bav\u00ed? Ako uv\u00e1dza jeho mamina, ide o vesel\u00e9 die\u0165a, ktor\u00e9ho nezauj\u00edmaj\u00fa be\u017en\u00e9 hra\u010dky: \u201eNen\u00e1jdete ho hra\u0165 sa s\u00a0aut\u00ed\u010dkami, alebo sklada\u0165 kocky. Vo v\u00fdnimo\u010dn\u00fdch situ\u00e1ci\u00e1ch, ke\u010f je nejak\u00e1 hra\u010dka nov\u00e1, tak ho zaujme na p\u00e1r min\u00fat a\u00a0ide \u010falej svojou cestou. Je neuverite\u013ene spolo\u010densk\u00fd, miluje deti. Ke\u010f je u\u00a0n\u00e1s ruch, n\u00e1v\u0161teva, veselo, vtedy je aj on spokojn\u00fd. Ve\u013emi r\u00e1d \u201emajstruje\u201c okolo domu so svoj\u00edm tatom, ktor\u00fd si k\u00a0nemu na\u0161iel cestu i napriek hendikepu a\u00a0s\u00fa ve\u013ek\u00ed kamo\u0161i pri dom\u00e1cich pr\u00e1cach. Timotejko kos\u00ed tr\u00e1vnik takmer celej ulici (samozrejme detskou kosa\u010dkou), ke\u010f nie\u010do rozsype, hne\u010f ide pre vys\u00e1va\u010d, fascinuj\u00fa ho \u0161r\u00f3by, hadi\u010dky, r\u00fary na vodu a\u00a0takmer v\u0161etky elektrospotrebi\u010de,\u201c vymenov\u00e1va Mirka.<\/p>\n

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Foto: Timotejko so svojou rodinou \u00a9Private<\/p><\/div>\n

Moment\u00e1lne ovl\u00e1da Timotejko len tri slov\u00e1: mama, ham a\u00a0m\u0148am. \u201ePre neho s\u00fa v\u0161ak ve\u013emi d\u00f4le\u017eit\u00e9, preto\u017ee, \u010do nezje jeho, to zje on,\u201c smeje sa Mirka. Posunkova\u0165 s\u00a0n\u00edm rodi\u010dia za\u010dali, ale aj prestali, preto\u017ee, ke\u010f sa nau\u010dil posunok, z\u00e1rove\u0148 vymizol zvuk. \u201eVyd\u00e1va r\u00f4zne zvuky, ale nie je to ni\u010d \u0161pecifick\u00e9. Povedala by som, \u017ee za\u010d\u00edna op\u00e4\u0165 b\u013eabota\u0165. Vyjadruje sa v\u0161ak svojsk\u00fdm sp\u00f4sobom, uk\u00e1\u017ee, chyt\u00ed za ruku, odvedie, to, \u010do potrebuje vysvetli\u0165 alebo docieli\u0165, to n\u00e1m v\u017edy nejak\u00fdm sp\u00f4sobom uk\u00e1\u017ee. Odkedy Timotejko nav\u0161tevuje hipoterapiu, objavuj\u00fa sa u\u00a0neho nov\u00e9 p\u00edsmenk\u00e1 a\u00a0viac si osvojil niektor\u00e9 zvuky, ktor\u00e9 pou\u017e\u00edva pri hre,\u201c dop\u013a\u0148a mama Mirka.<\/p>\n

Timotejko je sledovan\u00fd celkovo v\u00a0siedmych odborn\u00fdch ambulanci\u00e1ch. Chod\u00ed na fyzioterapiu, pri\u010dom rodi\u010dom bol pre neho odpor\u00fa\u010dan\u00fd aj rehabilita\u010dn\u00fd pobyt. Je sledovan\u00fd na o\u010dnej ambulancii z\u00a0d\u00f4vodu \u0161k\u00falenia, pravidelne pracuje s\u00a0logopedi\u010dkou, nav\u0161tevuje\u00a0CVI (Centrum v\u010dasnej intervencie) a\u00a0v\u00a0r\u00e1mci toho cvi\u010denia, ktor\u00e9 s\u00fa zameran\u00e9 na sluch i\u00a0rozvoj v\u00a0tejto oblasti a\u00a0v\u00a0neposlednom rade chod\u00ed na\u00a0hipoterapiu. \u201eV\u00a0dom\u00e1com prostred\u00ed sa s\u00a0n\u00edm sna\u017e\u00edme nen\u00fatenou formou pracova\u0165 pod\u013ea pokynov odborn\u00edkov, hoci je to ve\u013emi \u0165a\u017ek\u00e9, lebo Timotejko nem\u00e1 vn\u00fatorn\u00fa motiv\u00e1ciu pracova\u0165 za stolom alebo udr\u017ea\u0165 pozornos\u0165 pri \u010dinnosti. Najviac sa moment\u00e1lne sna\u017e\u00edme neby\u0165 ticho. Neust\u00e1le ho komentujeme, \u010do rob\u00ed, kam ide, pomenov\u00e1vame veci a\u00a0\u010dinnosti v\u00a0jeho okol\u00ed. Ke\u010f\u017ee nie je ako v\u00e4\u010d\u0161ina det\u00ed, mus\u00edme to sk\u00fa\u0161a\u0165 za pochodu,\u201c vysvet\u013euje Mirka.<\/p>\n

P\u00fdtali sme sa aj na to, ako vn\u00edma rodina Timotejkovu poruchu sluchu spojen\u00fa s\u00a0\u010fal\u0161\u00edmi diagn\u00f3zami. Timotejkov otec pod\u013ea mamy Mirky niesol ochorenie syna ve\u013emi \u0165a\u017eko: \u201eboli v\u0161elijak\u00e9 chv\u00edle, predsa len chlapi sm\u00fatia inak, ako ke\u010f sa my \u017eeny vypla\u010deme \u2013 chv\u00ed\u013eu sme hysterick\u00e9 a\u00a0n\u00e1sledne fungujeme, lebo mus\u00edme. Chcelo to \u010das a\u00a0prija\u0165 osud. Spolu sme to v\u0161etko prekonali a dnes tu stoj\u00edme po boku, jeden pre druh\u00e9ho a\u00a0vz\u00e1jomne sa \u0165ah\u00e1me,\u201c kon\u0161tatuje Mirka a\u00a0podot\u00fdka, \u017ee maj\u00fa \u0161\u0165astie na t\u00fa najlep\u0161iu rodinu. \u010co sa t\u00fdka babiek, dedka a\u00a0sestry s\u00a0rodinou, robia pre Timotejka prv\u00e9 aj posledn\u00e9. Mirkini rodi\u010dia aj sestra ich nav\u0161tevuj\u00fa takmer denne, preto\u017ee b\u00fdvaj\u00fa bl\u00edzko: \u201eAk n\u00e1hodou nie sme spolu, tak si ve\u010der vol\u00e1me, k\u00fdm n\u00e1s oper\u00e1tor nevypne. Ke\u010f je man\u017eel v\u00a0pr\u00e1ci a\u00a0treba cestova\u0165 do in\u00e9ho mesta, chodia s\u00a0nami autom. Podporuj\u00fa n\u00e1s, dr\u017eia n\u00e1s hlavne psychicky nad vodou. Str\u00e1\u017eia n\u00e1m deti, ke\u010f potrebujeme na chv\u00ed\u013eku unikn\u00fa\u0165. Ale celkovo, rodina z\u00a0oboch str\u00e1n n\u00e1s podporuje, zauj\u00edmaj\u00fa sa v\u0161etci a\u00a0dr\u017eia n\u00e1m palce. Kedyko\u013evek sa m\u00f4\u017eem obr\u00e1ti\u0165 i na man\u017eelov\u00fdch s\u00farodencov. Sme v\u00a0pravidelnom telefonickom kontakte, p\u00ed\u0161eme si a\u00a0stret\u00e1vame sa v\u017edy ke\u010f je to mo\u017en\u00e9, nako\u013eko b\u00fdvaj\u00fa \u010falej od n\u00e1s,\u201c pochva\u013euje si Mirka vz\u00e1cne rodinn\u00e9 vz\u0165ahy.<\/p>\n

Mama Mirka tvrd\u00ed, \u017ee i\u00a0s\u00farodeneck\u00e9 vz\u0165ahy s\u00fa vynikaj\u00face a \u017ee ide o l\u00e1sku na cel\u00fd \u017eivot: \u201eNikto nedostane Kamilku z\u00a0postele tak r\u00fdchlo ako Timotej a nikto Timotejka do postele na tu\u013ekanie tak, ako Kamilka. T\u00fdm, \u017ee je u\u017e star\u0161ia, vie ho zabavi\u0165, urobi\u0165 mu jes\u0165, hr\u00e1 sa s n\u00edm. \u010coko\u013evek, s\u00a0\u010d\u00edm je treba pom\u00f4c\u0165, pom\u00f4\u017ee. Dokonca si vybrala stredn\u00fa zdravotn\u00fa \u0161kolu po tom, ako ochorel, preto\u017ee povedala, \u017ee ona mu mus\u00ed nejako v\u00a0bud\u00facnosti pom\u00f4c\u0165. Timotejko po nej samozrejme v\u0161etko opakuje. Nikdy sa za neho nehanbila, alebo ho neodstrkovala s t\u00fdm, \u017ee je in\u00fd. Ale ja si mysl\u00edm, \u017ee ka\u017ed\u00e9 die\u0165a, ktor\u00e9 ma s\u00farodenca so \u0161peci\u00e1lnymi potrebami, je svoj\u00edm sp\u00f4sobom trochu v\u00a0pozad\u00ed,\u201c kon\u0161tatuje.<\/p>\n

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Foto: najlep\u0161\u00ed s\u00farodenci \u00a9Private<\/p><\/div>\n

Jedna z ot\u00e1zok smerovala i na to, ako vn\u00edma pomoc \u0161t\u00e1tu pre zdravotne znev\u00fdhodnen\u00fdch. Pod\u013ea Mirky ide o poddimenzovan\u00fa oblas\u0165. Rodi\u010dia, pre ktor\u00fdch je \u017eivotn\u00e1 situ\u00e1cia nov\u00e1 a nemaj\u00fa sk\u00fasenosti v\u00a0tejto oblasti, nemaj\u00fa \u0161ancu vedie\u0165, ale tie\u017e z\u00edska\u0165 potrebn\u00e9 inform\u00e1cie. Ako tvrd\u00ed, \u201ez\u00edskavaj\u00fa sa neuverite\u013ene \u0165a\u017eko. Byrokracia, neochota, nedostupn\u00e9 inform\u00e1cie, smie\u0161ne podmienky, ktor\u00e9 si ur\u010dil \u0161t\u00e1t na pomoc pre \u0165a\u017eko sk\u00fa\u0161an\u00e9 rodiny. Ur\u010dite by som ocenila, keby sa robila nejak\u00e1 forma osvety na pomoc t\u00fdmto rodin\u00e1m. Samozrejme, ka\u017ed\u00e9 jedno die\u0165a s nejak\u00fdm zdravotn\u00fdm obmedzen\u00edm m\u00e1 t\u00fdch n\u00e1rokov a po\u017eiadaviek viac a mysl\u00edm si, \u017ee je nemo\u017en\u00e9 v mnoh\u00fdch pr\u00edpadoch to ust\u00e1\u0165. Bu\u010f sa mus\u00edte obmedzi\u0165 a nevyu\u017eijete \u017eiadnu mo\u017enos\u0165, ktor\u00fa pois\u0165ovne pova\u017euj\u00fa za nad\u0161tandard, alebo sa \u017eivite\u013e rodiny prechodne ods\u0165ahuje do svojej pr\u00e1ce a bude bra\u0165 v\u0161etky mo\u017en\u00e9 nad\u010dasy. Vtedy cel\u00e1 starostlivos\u0165 ost\u00e1va na jedn\u00e9ho \u010dlena rodiny. Mysl\u00edm si, \u017ee \u0161t\u00e1t v t\u00fdchto sf\u00e9rach neuverite\u013ene a denne zlyh\u00e1va. Len be\u017en\u00e9 zdravotn\u00e9 pom\u00f4cky s\u00fa nehor\u00e1zne drah\u00e9, taktie\u017e n\u00e1hradn\u00e9 diely ku KI...\u201c Je st\u00e1le faktom, \u017ee KI sa na Slovensku ani nedaj\u00fa poisti\u0165. Je tu v\u0161ak n\u00e1rok od pois\u0165ovne na nov\u00e9 procesory ka\u017ed\u00fdch p\u00e4\u0165 rokov.<\/p>\n

\u201eA to e\u0161te nespom\u00ednam r\u00f4zne terapie, cvi\u010denia, rehabilit\u00e1cie a podobne. Presne preto som sa i ja rozhodla oslovi\u0165 nieko\u013eko nad\u00e1ci\u00ed a\u00a0r\u00f4zne zdru\u017eenia na pomoc \u013eu\u010fom. Ve\u013emi som so sebou bojovala, \u010di to m\u00e1m urobi\u0165, ale nakoniec som si povedala, \u017ee to rob\u00edm pre svoje die\u0165a, lebo chcem pom\u00f4c\u0165 jemu a posun\u00fa\u0165 ho vpred. Jedin\u00e9, \u010do sa mi v\u0161ak podarilo nejak\u00fdm sp\u00f4sobom zatia\u013e presadi\u0165, bolo vyhl\u00e1senie zbierky na str\u00e1nke Donio[11]<\/a>. Doposia\u013e sme si v\u0161etky Timotejkove terapie a\u00a0cvi\u010denia platili z\u00a0vlastn\u00e9ho vrecka, no \u00faspory sa postupne m\u00ed\u0148aj\u00fa a\u00a0\u017eiadna terapia nem\u00e1 \u00fa\u010dinok, ak v\u00a0jej polovici prestanete. Je to dlhodob\u00fd proces. Hlavne ke\u010f vid\u00edte tie postupn\u00e9 pokroky a\u00a0te\u0161\u00edte sa z\u00a0tak\u00fdch mali\u010dkosti, ako je napr\u00edklad to, \u017ee Timotejko opakuje fu\u010danie ko\u0148a. Mo\u017eno je to smie\u0161ne, ale ja som ho u\u010dila f\u00faka\u0165 asi tri mesiace a\u00a0nevedela som mu to vysvetli\u0165 tak, aby to zopakoval. K\u00f4\u0148 ho to nau\u010dil za dvadsa\u0165 min\u00fat,\u201c smeje sa Mirka.<\/p>\n

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Foto: Timotejkovi ve\u013emi pom\u00e1ha hipoterapia \u00a9Private<\/p><\/div>\n

Moment\u00e1lne \u010dak\u00e1 Timotejka n\u00e1stup do be\u017enej \u0161k\u00f4lky. Musia ho v\u0161ak dovtedy odplienkova\u0165, \u010do sa rodi\u010dom moment\u00e1lne ve\u013emi nedar\u00ed, av\u0161ak ber\u00fa to ako v\u00fdzvu, ktor\u00e1 by ich mohla op\u00e4\u0165 niekam posun\u00fa\u0165. V\u00a0\u0161k\u00f4lke by pod\u013ea Mirky za\u017eil nov\u00e9 zvuky, mo\u017eno by sa za\u010dal prejavova\u0165 inak. Nechce ma\u0165 v\u0161ak ve\u013ek\u00e9 o\u010dak\u00e1vania a\u00a0nech\u00e1va to otvoren\u00e9.<\/p>\n

Na ot\u00e1zku, \u010do by si Mirka priala od \u0161t\u00e1tu \u010di in\u0161tit\u00faci\u00ed, je hlavne dostatok inform\u00e1ci\u00ed a rie\u0161i\u0165 dotazy \u013eud\u00ed, ktor\u00ed si konkr\u00e9tny probl\u00e9m za\u017e\u00edvaj\u00fa. Taktie\u017e zdru\u017eova\u0165 \u013eud\u00ed a deti s rovnakou diagn\u00f3zou a neprehadzova\u0165 si detsk\u00fdch pacientov z dver\u00ed do dver\u00ed: \u201ePoveda\u0165 o v\u0161etk\u00fdch mo\u017enostiach, ktor\u00e9 m\u00e1me, \u010do m\u00f4\u017eeme vyu\u017ei\u0165, \u010do nem\u00e1me zanedba\u0165, na \u010do m\u00e1me n\u00e1rok a ako to vybavi\u0165, resp. na koho sa obr\u00e1ti\u0165. Ne\u010daka\u0165 na ot\u00e1zky od rodi\u010dov, t\u00ed s\u00fa \u010dastokr\u00e1t v takom \u0161oku, \u017ee absol\u00fatne nevedia, \u010do sa maj\u00fa op\u00fdta\u0165. Podrobne vysvetli\u0165 postup, \u010do bude nasledova\u0165,\u201c vymenov\u00e1va. Taktie\u017e by si priala podporn\u00e9 opatrenia a psychologick\u00fa pomoc. A predov\u0161etk\u00fdm by chcela apelova\u0165 na verejnos\u0165: \u201ePrijmite na\u0161e deti, tak\u00e9, ak\u00e9 s\u00fa. Ony si nevybrali t\u00fato cestu, ale sna\u017eia sa ju zvl\u00e1da\u0165 ako najlep\u0161ie vedia. Pou\u010dte aj svoje deti, ke\u010f n\u00e1s stretnete na ihrisku. Nie sme in\u00ed ako vy, sme len svoj\u00edm sp\u00f4sobom v\u00fdnimo\u010dn\u00ed,\u201c podot\u00fdka.<\/p>\n

Mirka by tie\u017e chcela povzbudi\u0165 v\u0161etk\u00fdch rodi\u010dov: \u201eNenechajte sa odbi\u0165, je to va\u0161e die\u0165a a\u00a0ono si ur\u010dite zasl\u00fa\u017ei najviac. Bojujte, p\u00fdtajte sa, h\u013eadajte, oslovte \u013eud\u00ed s\u00a0podobn\u00fdmi pr\u00edbehmi. Budete prekvapen\u00ed, ako rodi\u010dia vedia by\u0165 empatick\u00ed k\u00a0podobn\u00fdm osudom. A\u00a0\u010do je hlavn\u00e9, nehanbite sa a\u00a0nevy\u010d\u00edtajte si ni\u010d. Ja som sa tr\u00e1pila ve\u013emi dlho a\u00a0zbyto\u010dne ma to oberalo o\u00a0silu a\u00a0energiu, potom to\u00a0len vo mne vyvol\u00e1valo neistotu a\u00a0sm\u00fatok. Neskr\u00fdvajte sa a\u00a0nebu\u010fte ticho. Komunikujte medzi sebou, aby ste vedeli, \u017ee ste tam jeden pre druh\u00e9ho. Deti s\u00a0poruchami sluchu m\u00f4\u017eu by\u0165 k\u00fdmko\u013evek sa im za\u017eiada. Bu\u010fme v\u010fa\u010dn\u00ed, \u017ee sluch je jeden zo zmyslov, ktor\u00fd sa d\u00e1 kompenzova\u0165. Pripom\u00ednam, h\u013eadajte rodiny s\u00a0podobn\u00fdm osudom. Je ve\u013ea skup\u00edn s\u00a0\u013eu\u010fmi ochotn\u00fdmi v\u00e1m pom\u00f4c\u0165 a\u00a0poradi\u0165. Ka\u017ed\u00fd jeden \u010dlovek, ktor\u00fd si pre\u0161iel \u0165a\u017ekou situ\u00e1ciou so svoj\u00edm die\u0165a\u0165om, v\u00e1m osobne d\u00e1 viac, ako pre\u010d\u00edtan\u00fdch 20 kn\u00edh a\u00a0100 pr\u00edspevkov na soci\u00e1lnej sieti. Nikto nie je vo svojom tr\u00e1pen\u00ed s\u00e1m a hoci to vyzer\u00e1 \u010dastokr\u00e1t ve\u013emi zle, natiahnite ruku a\u00a0pomoc pr\u00edde... s\u013eubujem! A\u00a0na z\u00e1ver, majte trpezlivos\u0165, aj ke\u010f ja sama to slovo nezn\u00e1\u0161am, \u010di u\u017e vo\u010di die\u0165a\u0165u, partnerovi, rodine, chorobe, alebo ostatn\u00fdm \u013eu\u010fom. Ja som spo\u010diatku nech\u00e1pala a\u00a0ve\u013emi ma to hnevalo, ke\u010f sa po dedine za nami ot\u00e1\u010dali v\u0161etky hlavy, dokonca raz sa ma v\u00a0kostole sp\u00fdtala jedna pani, kde sa daj\u00fa k\u00fapi\u0165 tak\u00e9to svetielka na u\u0161i... Trpezlivos\u0165 a\u00a0Bo\u017eiu l\u00e1sku... Ak je to mo\u017en\u00e9, vyu\u017eite pr\u00edle\u017eitos\u0165 zozn\u00e1mi\u0165 sa s\u00a0rodinkou, s\u00a0ktorou budete spolo\u010dne implantovan\u00ed. N\u00e1m to ve\u013emi pomohlo, ke\u010f sme sa dr\u017eali navz\u00e1jom po oper\u00e1cii. Stret\u00e1vame sa dodnes a\u00a0z chlapcov s\u00fa ve\u013ek\u00ed kamo\u0161i,\u201c hovor\u00ed s\u00a0\u00fasmevom.<\/p>\n

Mirka m\u00e1 tie\u017e posolstvo pre v\u0161etky \u0161peci\u00e1lne deti a Timotejka: \u201eNech tak\u00fdmi aj ostan\u00fa. Presne to ich rob\u00ed v\u00fdnimo\u010dn\u00fdmi a\u00a0dokonal\u00fdmi. N\u00e1\u0161mu Timotejkovi by som povedala len to, \u017ee ho neskuto\u010dne v\u0161etci milujeme. Urobili sme pre teba v\u0161etko a\u00a0najviac, \u010do sme mohli a\u00a0v\u017edy to budeme robi\u0165 pre v\u00e1s oboch. Te\u0161\u00edme sa z\u00a0ka\u017ed\u00e9ho tvojho aj ke\u010f malink\u00e9ho kr\u00f4\u010dika vpred. Ver\u00edm, \u017ee ke\u010f si raz bude\u0161 toto \u010d\u00edta\u0165, spust\u00ed\u0161 na n\u00e1s slovn\u00fa sprchu nekone\u010dn\u00fdch zvedav\u00fdch ot\u00e1zok. Prajem ti, aby si bol v\u017edy tak\u00e9 usmievav\u00e9 slnie\u010dko s\u00a0dobrou n\u00e1ladou a\u00a0poh\u013eadom na svet cez dobro a\u00a0l\u00e1sku. Nech nikdy nestretne\u0161 pre svoj hendikep v\u00a0\u017eivote odmietnutie a\u00a0nech v\u0161etko, \u010do si v\u010faka tomu za\u017eil, \u0165a posunie vpred. V\u017edy tu budeme v\u0161etci pre teba, len u\u017e si budeme musie\u0165 d\u00e1va\u0165 pozor, aby sme nespievali falo\u0161ne, preto\u017ee ja ver\u00edm, \u017ee ty to v\u0161etko zvl\u00e1dne\u0161 a\u00a0za\u010dlen\u00ed\u0161 sa do be\u017en\u00e9ho \u017eivota bez ak\u00e9hoko\u013evek obmedzenia.\u201c<\/p>\n

Taktie\u017e by chcela Mirka odk\u00e1za\u0165 svojej rodine jedno ve\u013ek\u00e9 \u010fakujem: \u201eOd man\u017eela, ktor\u00fd rob\u00ed pre n\u00e1s v\u0161etk\u00fdch aj nemo\u017en\u00e9, dc\u00e9rke Kamilke, ktor\u00e1 je s\u00a0Timotejkom v\u017edy, ke\u010f m\u00f4\u017ee a\u00a0vym\u00fd\u0161\u013ea mu program. Po\u010fakovanie patr\u00ed aj rodi\u010dom, sestre s\u00a0rodinou, man\u017eelov\u00fdm s\u00farodencom a\u00a0na\u0161\u00edm priate\u013eom. Za to, \u017ee v\u0161etci zvl\u00e1daj\u00fa moje stavy, ke\u010f mi je zle, blb\u00e9 filozofick\u00e9 ot\u00e1zky do telef\u00f3nu, \u017ee plakali spolu s\u00a0nami, ke\u010f sme sa to v\u0161etko dozvedeli,\u00a0\u017ee s\u00fa tu v\u017edy, ke\u010f si vymysl\u00edm nov\u00fa v\u00fdzvu do \u017eivota a\u00a0za mili\u00f3n litrov k\u00e1vy na odreagovanie.\u201c<\/p>\n

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Foto: \u0161\u0165astn\u00e1 rodina prekon\u00e1vaj\u00faca prek\u00e1\u017eky \u00a9Private<\/p><\/div>\n

\u017divot s die\u0165a\u0165om, ktor\u00e9 stratilo sluch n\u00e1sledkom choroby, je cestou, ktor\u00fa si \u017eiadny rodi\u010d nevyber\u00e1, ale kr\u00e1\u010da po nej s odhodlan\u00edm, l\u00e1skou a vierou v \u00faspech. Kochle\u00e1rne implant\u00e1ty priniesli n\u00e1dej tam, kde predt\u00fdm vl\u00e1dlo ticho. Av\u0161ak technol\u00f3gia sama o sebe nesta\u010d\u00ed. Na Slovensku je st\u00e1le potrebn\u00e9 budova\u0165 syst\u00e9m, ktor\u00fd bude citliv\u00fd, dostupn\u00fd a\u00a0inkluz\u00edvny, a\u00a0to od zdravotnej starostlivosti, cez vzdel\u00e1vanie, a\u017e po prijatie spolo\u010dnos\u0165ou. Z poh\u013eadu mamy je ka\u017ed\u00fd pokrok die\u0165a\u0165a, \u010di u\u017e ide o reagovanie na zvuk, \u00fasmev pri zvuku hudby, \u010di prv\u00e9 slovo, mal\u00fdm z\u00e1zrakom. No za ka\u017ed\u00fdm z\u00e1zrakom stoj\u00ed nevidite\u013en\u00e1 pr\u00e1ca, vytrvalos\u0165 a podpora. Tento pr\u00edbeh nie je iba o strate sluchu, ale o sile rodiny, o mo\u017enostiach modernej medic\u00edny a o tom, \u017ee aj na Slovensku sa d\u00e1 \u017ei\u0165 plnohodnotne, pokia\u013e sa spoj\u00ed odborn\u00e1 pomoc s \u013eudsk\u00fdm pochopen\u00edm.<\/p>\n

Mal\u00e9ho Timotejka m\u00f4\u017eete podpori\u0165 aj vy, a\u00a0to finan\u010dn\u00fdm darom, pri\u010dom finan\u010dn\u00e9 prostriedky z\u00a0 kampane Donia bud\u00fa pou\u017eit\u00e9 na pokrytie hipoterapie v\u00a0centre Hipoly[12]<\/a>, pod doh\u013eadom diplomovan\u00e9ho fyzioterapeuta a\u00a0hipoterapeuta:<\/p>\n

https:\/\/donio.sk\/timotejkova-cesta-za-hlasom<\/a><\/p>\n

Mirka v\u00e1m v\u0161etk\u00fdm \u010fakuje!<\/p>\n

Autor: Miroslava Zemanov\u00e1<\/em><\/p>\n

\n

[1]<\/a> https:\/\/www.mojalekaren.sk\/clanok\/sedem-detskych-chorob\/?srsltid=AfmBOorwSzHKt8CbI6L7L23DhcvG1VoGiJeN-fITbrgIqP3T6hUrNqMf<\/a><\/p>\n

[2]<\/a> https:\/\/infosluch.sk\/1422\/priznaky-poruchy-sluchu\/<\/a><\/p>\n

[3]<\/a> https:\/\/www.who.int\/news-room\/fact-sheets\/detail\/deafness-and-hearing-loss#:~:text=Some%20simple%20strategies%20for%20prevention%20of%20hearing%20loss,women%20of%20reproductive%20age%20against%20rubella%20before%20pregnancy%3B<\/a><\/p>\n

[4]<\/a> https:\/\/www.health.gov.sk\/Zdroje?\/Sources\/dokumenty\/SDTP\/standardy\/15-5-2021\/22_1_SDLP-pri-kompenzacii-poruchy-sluchu-nacuvacimi-pristrojmi-u-deti-Pneumologia-a-ftizeologia.pdf<\/a><\/p>\n

[5]<\/a> https:\/\/www.solen.sk\/storage\/file\/article\/c8686e5e743a36c0752d4fe32d0731bb.pdf<\/a><\/p>\n

[6]<\/a> https:\/\/pmc.ncbi.nlm.nih.gov\/articles\/PMC10808382\/<\/a><\/p>\n

[7]<\/a> https:\/\/hoffmannaudiology.com\/blog\/can-mumps-cause-permanent-hearing-loss<\/a><\/p>\n

[8]<\/a> https:\/\/www.health.gov.sk\/Zdroje?\/Sources\/kategorizacia\/zkszm\/202404\/Limity-SZM-202404.pdf<\/a><\/p>\n

[9]<\/a> https:\/\/cesradiol.cz\/pdfs\/rad\/2011\/04\/08.pdf<\/a><\/p>\n

[10]<\/a> https:\/\/www.solen.sk\/storage\/file\/article\/837bced8aa20d8c50bd400fd8017ab7a.pdf<\/a><\/p>\n

[11]<\/a> https:\/\/donio.sk\/timotejkova-cesta-za-hlasom<\/a><\/p>\n

[12]<\/a> https:\/\/www.hipoly.sk\/<\/a><\/p>\n<\/div><\/div><\/div><\/div><\/div><\/p>\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":2,"featured_media":33061,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[418],"tags":[],"class_list":["post-33060","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-veda-sk"],"yoast_head":"\nDie\u0165a po prekonan\u00ed choroby s \u0165a\u017ekou poruchou sluchu kompenzovanou KI a jeho \u017eivot na Slovensku z poh\u013eadu rodi\u010da - Slovak<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/lifelonghearing.com\/sk\/dieta-po-prekonani-choroby-s-tazkou-poruchou-sluchu-kompenzovanou-ki-a-jeho-zivot-na-slovensku-z-pohladu-rodica\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Die\u0165a po prekonan\u00ed choroby s \u0165a\u017ekou poruchou sluchu kompenzovanou KI a jeho \u017eivot na Slovensku z poh\u013eadu rodi\u010da - 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