{"id":23226,"date":"2023-02-15T10:16:45","date_gmt":"2023-02-15T09:16:45","guid":{"rendered":"https:\/\/lifelonghearing.com\/?p=23226"},"modified":"2025-04-17T04:45:30","modified_gmt":"2025-04-17T04:45:30","slug":"lepsi-lobbovani-za-uzivatele-kochlearnich-implantatu","status":"publish","type":"post","link":"https:\/\/lifelonghearing.com\/cs\/lepsi-lobbovani-za-uzivatele-kochlearnich-implantatu\/","title":{"rendered":"Lep\u0161\u00ed lobbov\u00e1n\u00ed za u\u017eivatele kochle\u00e1rn\u00edch implant\u00e1t\u016f"},"content":{"rendered":"

V\u00edce lobbov\u00e1n\u00ed a anga\u017eovanosti ze strany u\u017eivatel\u016f kochle\u00e1rn\u00edch implant\u00e1t\u016f a za jejich z\u00e1jmy<\/h1><\/div>

Robert Mandara, viceprezident Evropsk\u00e9 asociace u\u017eivatel\u016f kochle\u00e1rn\u00edch implant\u00e1t\u016f (EURO-CIU<\/a>) a s\u00e1m u\u017eivatel oboustrann\u00e9ho kochle\u00e1rn\u00edho implant\u00e1tu, vyzval na valn\u00e9m shrom\u00e1\u017ed\u011bn\u00ed EURO-CIU 2022 v Rotterdamu v\u0161echny u\u017eivatele kochle\u00e1rn\u00edch implant\u00e1t\u016f k v\u011bt\u0161\u00ed anga\u017eovanosti v oblasti zdravotn\u00ed politiky v jejich vlastn\u00ed prosp\u011bch. Kr\u00e1tk\u00e9 shrnut\u00ed jeho projevu. <\/strong><\/p>\n<\/div>

<\/span><\/div><\/div><\/div><\/div><\/div>

Opr\u00e1vn\u011bn\u011b si st\u011b\u017eujeme, \u017ee p\u0159\u00edstup ke kochle\u00e1rn\u00edm implant\u00e1t\u016fm a modernizaci procesor\u016f nen\u00ed dostate\u010dn\u00fd, \u017ee screening sluchu u novorozenc\u016f by m\u011bl b\u00fdt u\u017e d\u00e1vno dostupn\u00fd v\u0161ude, a na mnoho dal\u0161\u00edho. Ale jsme tak\u00e9 sami sob\u011b obh\u00e1jci, pr\u00e1vn\u00edky, lobbisty za sv\u00e9 vlastn\u00ed v\u011bci! N\u00e1\u0161 \u00fasp\u011bch z\u00e1vis\u00ed na tom, jak d\u016frazn\u011b budeme zastupovat sv\u00e9 vlastn\u00ed z\u00e1jmy.<\/p>\n

V\u00fdrobci CI to nedok\u00e1\u017eou d\u011blat d\u016fv\u011bryhodn\u011b; v\u00fdzkumn\u00edci a klini\u010dt\u00ed l\u00e9ka\u0159i nemaj\u00ed takov\u00fd vliv, jak by \u010dlov\u011bk doufal. Proto\u017ee my, jako u\u017eivatel\u00e9 a jejich rodinn\u00ed p\u0159\u00edslu\u0161n\u00edci, m\u00e1me k dan\u00e9 problematice nejbl\u00ed\u017ee, m\u016f\u017eeme o n\u00ed mluvit nejl\u00e9pe.<\/p>\n

Poka\u017ed\u00e9, kdy\u017e jsme vid\u011bni se sv\u00fdmi CI, automaticky t\u00edm zvy\u0161ujeme pov\u011bdom\u00ed o kochle\u00e1rn\u00edch implant\u00e1tech u \u0161irok\u00e9 ve\u0159ejnosti. A kdy\u017e jedn\u00e1me spole\u010dn\u011b ve velk\u00e9m sdru\u017een\u00ed, m\u016f\u017eeme zv\u00fd\u0161it hlas mnohem hlasit\u011bji ne\u017e jednotlivec.<\/p>\n

Nad\u0161en\u00ed pro kochle\u00e1rn\u00ed implant\u00e1ty nen\u00ed v\u0161eobecn\u00e9<\/h2>\n

P\u0159ed d\u016fle\u017eit\u00fdm rozhodnut\u00edm by lid\u00e9 m\u011bli zv\u00e1\u017eit v\u0161echny sv\u00e9 mo\u017enosti. Kandid\u00e1ti na CI by m\u011bli ud\u011blat tot\u00e9\u017e. N\u011bkte\u0159\u00ed z nich pak p\u0159ich\u00e1zej\u00ed do kontaktu s nesly\u0161\u00edc\u00edmi, z nich\u017e n\u011bkte\u0159\u00ed jsou z\u00e1sadn\u011b proti sluchov\u00e9 technice a CI; ti pak argumentuj\u00ed velmi p\u0159esv\u011bd\u010div\u011b - a tedy p\u0159esv\u011bd\u010div\u011b - i kdy\u017e to neznamen\u00e1, \u017ee by jejich argumenty byly spr\u00e1vn\u011bj\u0161\u00ed.<\/p>\n

B\u011bhem pandemie se zv\u00fd\u0161ila dostupnost znakov\u00e9ho jazyka v televizi. T\u00edm se do pop\u0159ed\u00ed z\u00e1jmu dostala skupina kulturn\u011b nesly\u0161\u00edc\u00edch. Nyn\u00ed pot\u0159ebujeme v televizi v\u00edce model\u016f s CI a tak\u00e9 poctiv\u00e9 zpravodajstv\u00ed o CI, abychom zde dos\u00e1hli ur\u010dit\u00e9 rovnov\u00e1hy.<\/p>\n

N\u011bkte\u0159\u00ed v\u00fdrobci naslouch\u00e1tek a odborn\u00edci na sluchovou p\u00e9\u010di maj\u00ed tak\u00e9 finan\u010dn\u00ed z\u00e1jem na tom, aby jejich klienti nem\u011bli implant\u00e1ty.<\/p>\n

N\u011bkdy argumentujeme sami proti sob\u011b!<\/h2>\n

Je d\u016fle\u017eit\u00e9, abychom zajistili dobr\u00e9 v\u00fdsledky pro v\u0161echny u\u017eivatele CI. Koneckonc\u016f, kdy\u017e n\u011bkte\u0159\u00ed z n\u00e1s mluv\u00ed o sv\u00fdch \"\u0161patn\u00fdch\" zku\u0161enostech se sluchem, je to vn\u00edm\u00e1no jasn\u011bji ne\u017e zpr\u00e1vy o \"dobr\u00fdch\" zku\u0161enostech se sluchem u spokojen\u00e9 v\u011bt\u0161iny. \u0160patn\u00e9 zpr\u00e1vy maj\u00ed ne\u00fam\u011brnou v\u00e1hu!<\/p>\n

I v jin\u00fdch ohledech mus\u00edme pe\u010dliv\u011b volit slova. Proto v\u00e1s v\u0161echny nab\u00e1d\u00e1m, abyste o kochle\u00e1rn\u00edch implant\u00e1tech v\u017edy mluvili v mno\u017en\u00e9m \u010d\u00edsle. Mluvit o \"CI\" by bylo jako mluvit od nyn\u011bj\u0161ka pouze o \"monoklu\" m\u00edsto o \"br\u00fdl\u00edch\"! Poka\u017ed\u00e9, kdy\u017e se mluv\u00ed o \"jednom CI\", posiluje to p\u0159edstavu, \u017ee jeden CI sta\u010d\u00ed. Ve v\u011bt\u0161in\u011b p\u0159\u00edpad\u016f je v\u0161ak lep\u0161\u00ed oboustrann\u00e1 implantace!<\/p>\n

A p\u0159esta\u0148me kone\u010dn\u011b diskutovat o n\u00e1kladech na kochle\u00e1rn\u00ed implantaci. N\u00e1sledn\u00e9 n\u00e1klady na hluchotu bez implant\u00e1tu jsou mnohem vy\u0161\u0161\u00ed. Kochle\u00e1rn\u00ed implant\u00e1ty jsou investic\u00ed, jej\u00ed\u017e n\u00e1vratnost se podle sou\u010dasn\u00fdch \u00fadaj\u016f odhaduje v pom\u011bru deset ku jedn\u00e9. Naopak hodnota implant\u00e1t\u016f pro jejich u\u017eivatele je nevy\u010d\u00edsliteln\u00e1. Pokud si zem\u011b m\u016f\u017ee dovolit neimplantovat, pak si rozhodn\u011b m\u016f\u017ee dovolit implantovat! Neuskute\u010dn\u011bn\u00ed t\u00e9to investice ni\u010d\u00ed \u017eivoty a ovliv\u0148uje rodiny a spole\u010dnost obecn\u011b.<\/p>\n

\u017d\u00e1dn\u00e1 jin\u00e1 \u010d\u00e1st zdravotn\u00ed p\u00e9\u010de nemus\u00ed dokazovat, \u017ee je rentabiln\u00ed - pro\u010d tedy CI?! Kochle\u00e1rn\u00ed implantace je neuv\u011b\u0159iteln\u00e1 investi\u010dn\u00ed p\u0159\u00edle\u017eitost; nen\u00ed lep\u0161\u00edho \u010dasu na investici ne\u017e nyn\u00ed!<\/p>\n

P\u00e9\u010de o CI se zhor\u0161uje - i v Evrop\u011b<\/h2>\n

Od doby, kdy byl kochle\u00e1rn\u00ed implant\u00e1t zhruba p\u0159ed 30 lety zp\u0159\u00edstupn\u011bn, jej obdr\u017eel p\u0159ibli\u017en\u011b milion lid\u00ed, z toho asi 250 000 v Evrop\u011b. To m\u016f\u017ee zn\u00edt jako velk\u00fd \u00fasp\u011bch, ale nen\u00ed tomu tak! Dnes m\u00e1 z ka\u017ed\u00fdch 20 lid\u00ed, kte\u0159\u00ed by pot\u0159ebovali CI, implant\u00e1t pouze jeden! A po\u010det kandid\u00e1t\u016f na CI roste rychleji ne\u017e po\u010det implantovan\u00fdch.<\/p>\n

Tato \u010d\u00edsla jsou odhady, ale je jedno, kter\u00e9mu odhadu byste mohli v\u011b\u0159it v\u00edce: V\u00fdsledek je v\u017edy stejn\u011b \u0161okuj\u00edc\u00ed. Jestli\u017ee trvalo 30 let, ne\u017e p\u011bt procent kandid\u00e1t\u016f na CI skute\u010dn\u011b dostalo CI, a pokud to bude pokra\u010dovat t\u00edmto tempem, bude trvat dal\u0161\u00edch 570 let, ne\u017e to bude mo\u017en\u00e9 pro zbytek. 570 let nen\u00ed \u010dekac\u00ed lh\u016fta na po\u0159adn\u00edku, znamen\u00e1 to, \u017ee implantace se nedo\u017eijete!<\/p>\n

Kdyby pro n\u00e1s byla l\u00e9\u010dba nevyl\u00e9\u010diteln\u00e9 nemoci dostupn\u00e1, dovolili bychom smrt 95 procent posti\u017een\u00fdch? V prvn\u00ed \u0159ad\u011b mus\u00edme bojovat za zkr\u00e1cen\u00ed t\u00e9to \u010dekac\u00ed doby 570 let na p\u0159ijatelnou a re\u00e1lnou \u00farove\u0148. Samotn\u00e1 implantace neodstran\u00ed v\u0161echny na\u0161e probl\u00e9my, ale vy\u0161\u0161\u00ed po\u010det u\u017eivatel\u016f CI p\u0159in\u00e1\u0161\u00ed v\u011bt\u0161\u00ed spole\u010denskou v\u00e1hu.<\/p>\n

Kl\u00ed\u010dov\u00e9 faktory: dostupnost, informovanost a celo\u017eivotn\u00ed p\u00e9\u010de!<\/h2>\n

Nenechme se p\u0159\u00edli\u0161 rozptylovat t\u011bmi probl\u00e9my, kter\u00e9 se t\u00fdkaj\u00ed v\u0161ech osob se sluchov\u00fdm posti\u017een\u00edm. Mus\u00edme velmi konkr\u00e9tn\u011b p\u0159esv\u011bd\u010dit ministerstva zdravotnictv\u00ed, vl\u00e1dy, politiky a kliniky, aby vybudovaly pot\u0159ebn\u00e9 financov\u00e1n\u00ed a infrastrukturu pro odpov\u00eddaj\u00edc\u00ed slu\u017eby CI. Zdravotn\u00edci si musej\u00ed uv\u011bdomit, jak dob\u0159e kochle\u00e1rn\u00ed implant\u00e1ty funguj\u00ed. \u0160irok\u00e1 ve\u0159ejnost mus\u00ed v\u011bd\u011bt, \u017ee kochle\u00e1rn\u00ed implant\u00e1ty nefunguj\u00ed tak primitivn\u011b, jak je l\u00ed\u010d\u00ed n\u011bkter\u00e1 m\u00e9dia. Ve skute\u010dnosti tento negativn\u00ed obraz zp\u016fsobuje, \u017ee se mnoho kandid\u00e1t\u016f na CI implantace boj\u00ed. Lid\u00e9 mohou sv\u016fj kritick\u00fd n\u00e1zor zm\u011bnit, ale chce to \u010das. Mn\u011b trvalo 18 let, ne\u017e jsem zm\u011bnil n\u00e1zor!<\/p>\n

Evropsk\u00e1 zast\u0159e\u0161uj\u00edc\u00ed organizace EURO-CIU chce vyu\u017e\u00edt sv\u00e9 s\u00edt\u011b a kontakt\u016f k podpo\u0159e organizac\u00ed v jednotliv\u00fdch zem\u00edch v jejich pr\u00e1ci. Nikdo z n\u00e1s samoz\u0159ejm\u011b nen\u00ed vy\u0161kolen\u00fd advok\u00e1t a lobbista, nicm\u00e9n\u011b jak v\u0161ichni v\u00edme, velk\u00e9 kroky se skl\u00e1daj\u00ed z mnoha mal\u00fdch krok\u016f. Za\u010dn\u011bme mal\u00fdmi aktivitami, nap\u0159\u00edklad na soci\u00e1ln\u00edch s\u00edt\u00edch. U\u010dme se jeden od druh\u00e9ho. A v neposledn\u00ed \u0159ad\u011b zapojme na\u0161i ml\u00e1de\u017e.<\/p>\n<\/div>

<\/div>

\"\"\"U\u010dme se jeden od druh\u00e9ho. A v neposledn\u00ed \u0159ad\u011b zapojme na\u0161i ml\u00e1de\u017e.\"<\/p>\n

\u00a9Robert Mandara<\/p>\n<\/div><\/div><\/div><\/div>

<\/div>

Mlad\u00ed u\u017eivatel\u00e9 CI maj\u00ed obrovsk\u00fd potenci\u00e1l!<\/h2>\n

Mlad\u00ed u\u017eivatel\u00e9 CI maj\u00ed fantastick\u00e9 komunika\u010dn\u00ed schopnosti. P\u0159esto je ve v\u011bt\u0161in\u011b organizac\u00ed CI postr\u00e1d\u00e1me. Bu\u010f jsme mlad\u00e9 lidi dostate\u010dn\u011b nep\u0159ipravili na to, aby se dok\u00e1zali postavit za sv\u00e1 pr\u00e1va a pot\u0159eby, nebo jsou na tom s implant\u00e1ty tak dob\u0159e, \u017ee je probl\u00e9my prost\u011b dostate\u010dn\u011b neroz\u010diluj\u00ed. Pokud se jim da\u0159\u00ed tak dob\u0159e, je to skv\u011bl\u00e9. Ale mus\u00ed pochopit, jak jsou privilegovan\u00ed; a \u017ee je jejich spole\u010denskou odpov\u011bdnost\u00ed pom\u00e1hat t\u011bm, kte\u0159\u00ed, jak bylo zm\u00edn\u011bno, budou jinak muset na tato privilegia \u010dekat dal\u0161\u00edch 570 let. Tak\u00e9 v jejich vlastn\u00edm z\u00e1jmu: a\u017e budou mo\u017en\u00e9 nov\u00e9 l\u00e9\u010debn\u00e9 postupy nebo technologie, oni sami pak mo\u017en\u00e1 budou odsunuti na druhou kolej.<\/p>\n

Nikdy nevy\u0159e\u0161\u00edme v\u0161echny probl\u00e9my, v\u00fdzvy se budou pouze m\u011bnit. Mo\u017en\u00e1, \u017ee jednoho dne budou kochle\u00e1rn\u00ed implant\u00e1ty nahrazeny lep\u0161\u00edm \u0159e\u0161en\u00edm. Lobbov\u00e1n\u00ed za u\u017eivatele CI v\u0161ak bude d\u016fle\u017eit\u00e9 tak dlouho, dokud bude na\u017eivu posledn\u00ed u\u017eivatel CI. Definujte jejich c\u00edle, usilujte o n\u011b a oslavujte ka\u017ed\u00fd velk\u00fd i mal\u00fd \u00fasp\u011bch!<\/p>\n<\/div>

<\/div>
<\/span>
Young CI users have fantastic communication skills but are not active enough in CI organizations. \u00a9Adobe Stock<\/div><\/div><\/div><\/div><\/div><\/div><\/div><\/div><\/p>\n","protected":false},"excerpt":{"rendered":"

V\u00edce lobbov\u00e1n\u00ed a anga\u017eovanosti ze strany u\u017eivatel\u016f kochle\u00e1rn\u00edch implant\u00e1t\u016f a za jejich z\u00e1jmy<\/p>\n","protected":false},"author":2,"featured_media":31860,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[470],"tags":[],"class_list":["post-23226","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-veda"],"yoast_head":"\nBetter Lobbying for Cochlear Implant Users - Czech<\/title>\n<meta name=\"description\" content=\"Robert Madara, viceprezident organizace EURO-CIU, vyzval v\u0161echny u\u017eivatele kochle\u00e1rn\u00edch implant\u00e1t\u016f k v\u011bt\u0161\u00ed anga\u017eovanosti ve zdravotnick\u00e9 politice ve sv\u016fj prosp\u011bch\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/lifelonghearing.com\/cs\/lepsi-lobbovani-za-uzivatele-kochlearnich-implantatu\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Better Lobbying for Cochlear Implant Users - 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