{"id":17436,"date":"2022-02-14T13:27:26","date_gmt":"2022-02-14T12:27:26","guid":{"rendered":"https:\/\/lifelonghearing.com\/?p=17436"},"modified":"2025-04-17T04:54:27","modified_gmt":"2025-04-17T04:54:27","slug":"rana-pece-o-sluch-u-deti-ktere-se-narodily-jako-neslysici","status":"publish","type":"post","link":"https:\/\/lifelonghearing.com\/cs\/rana-pece-o-sluch-u-deti-ktere-se-narodily-jako-neslysici\/","title":{"rendered":"Ran\u00e1 p\u00e9\u010de o sluch u d\u011bt\u00ed, kter\u00e9 se narodily jako nesly\u0161\u00edc\u00ed"},"content":{"rendered":"

Maja d\u00edky kochle\u00e1rn\u00edmu implant\u00e1tu op\u011bt sly\u0161\u00ed!<\/h1><\/div>

\u201eZpo\u010d\u00e1tku jsme byli v \u0161oku,\u201c vzpom\u00edn\u00e1 Patrick Beganovic na diagn\u00f3zu sv\u00e9 dcery Maji \u2013 hlubokou ztr\u00e1tu sluchu. D\u00edky kochle\u00e1rn\u00ed implantaci v Univerzitn\u00ed nemocnici v Linzu se rodina nyn\u00ed raduje z toho, \u017ee sly\u0161\u00ed Majina prvn\u00ed slova.<\/strong><\/p>\n<\/div>

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Majiny o\u010di se rozz\u00e1\u0159\u00ed a jej\u00ed pohled se pono\u0159\u00ed do krabice pln\u00e9 sladkost\u00ed. D\u00edvka, kter\u00e1 se narodila jako hluboce nesly\u0161\u00edc\u00ed, zbo\u017e\u0148uje sladkosti, zejm\u00e9na \u010dokol\u00e1du. Dnes si m\u016f\u017ee d\u00e1t kousek \u010dokol\u00e1dy jako odm\u011bnu za spolupr\u00e1ci p\u0159i testech sluchu. Dvouap\u016fllet\u00e1 hol\u010di\u010dka u\u017e dva m\u011bs\u00edce sly\u0161\u00ed s pomoc\u00ed kochle\u00e1rn\u00edho implant\u00e1tu. I d\u00edky tomu se jej\u00edm rodi\u010d\u016fm lesknou o\u010di: \u201eMaja byla ve v\u00fdvoji \u0159e\u010di hodn\u011b pozadu. Te\u010f si \u010dlov\u011bk ka\u017ed\u00fd den v\u0161\u00edm\u00e1, jak se to m\u011bn\u00ed!\u201c<\/p>\n

Probl\u00e9my se sluchem u d\u011bt\u00ed<\/h2>\n

Univerzitn\u00ed klinika v Linci je druh\u00fdm nejv\u011bt\u0161\u00edm d\u011btsk\u00fdm odd\u011blen\u00edm a nejv\u011bt\u0161\u00edm porodnick\u00fdm odd\u011blen\u00edm v Rakousku. T\u00fdm nemocnice se sna\u017e\u00ed rychle objasnit ka\u017edou diagn\u00f3zu s poruchou sluchu. Mag. Sabrina Ackerlov\u00e1 jako vedouc\u00ed logopedka ORL odd\u011blen\u00ed zd\u016fraz\u0148uje, \u017ee: \u201eD\u011bti, kter\u00e9 se zde narod\u00ed s podez\u0159el\u00fdm novorozeneck\u00fdm screeningov\u00fdm testem sluchu, dostanou up\u0159esn\u011bnou diagn\u00f3zu do konce prvn\u00edho m\u011bs\u00edce. A hned pot\u00e9 mohou b\u00fdt vybaveny naslouch\u00e1tky.\u201c<\/p>\n

\u201eD\u00edt\u011b s poruchou sluchu bude m\u00edt nakonec poruchy daleko v\u011bt\u0161\u00ed ne\u017e jen sluchov\u00e9\u201c Dr. Paul Martin Zwittag, MBA MSc vysv\u011btluje. \u201eP\u00e9\u010de o sluch u d\u011bt\u00ed je tedy v\u017edy investic\u00ed do budoucnosti.\u201c Dodnes se prim\u00e1\u0159 ORL odd\u011blen\u00ed v\u011bnuje zejm\u00e9na obnov\u011b sluchu u mal\u00fdch i star\u0161\u00edch pacient\u016f. Mal\u00e1 Maja bude t\u011b\u017eit z dlouholet\u00fdch zku\u0161enost\u00ed l\u00e9ka\u0159e a jeho t\u00fdmu, ale jej\u00ed cesta k n\u00e1vratu sluchu byla trochu problematick\u00e1.<\/p>\n

\u0158et\u011bzec nep\u0159\u00edzniv\u00fdch podm\u00ednek<\/h2>\n

Maja se narodila v dubnu 2019 ve \u0160t\u00fdrsku a jej\u00ed rodi\u010de se o probl\u00e9mech se sluchem dozv\u011bd\u011bli hned po narozen\u00ed. Jej\u00ed novorozeneck\u00fd screeningov\u00fd test sluchu byl podez\u0159el\u00fd a bylo nutn\u00e9 prov\u00e9st n\u00e1sledn\u00e1 vy\u0161et\u0159en\u00ed. Po opakov\u00e1n\u00ed testu sluchu se kv\u016fli technick\u00fdm probl\u00e9m\u016fm za\u010dali l\u00e9ka\u0159i mluvit o hlubok\u00e9 nedosl\u00fdchavosti a mo\u017enosti kochle\u00e1rn\u00ed implantace. M\u011bla v\u0161ak b\u00fdt provedena dal\u0161\u00ed vy\u0161et\u0159en\u00ed.
\nOtec si vzal dovolenou a vzal man\u017eelku s d\u00edt\u011btem na kliniku. Vzhledem k Majin\u011b v\u011bku a vzd\u00e1lenosti od domova cht\u011bli testy prov\u00e9st ve stacion\u00e1\u0159i. Rezervovan\u00e9 l\u016f\u017eko v\u0161ak muselo b\u00fdt poskytnuto akutn\u00edmu pacientovi a rodina se musela vr\u00e1tit dom\u016f.
\nMaja mezit\u00edm trochu vyrostla a u\u017e j\u00ed bylo 15 m\u011bs\u00edc\u016f. Jej\u00ed v\u00fdvoj \u0159e\u010di a chov\u00e1n\u00ed byly rodi\u010d\u016fm n\u00e1padn\u00e9: dok\u00e1zala se soust\u0159edit jen kr\u00e1tkou dobu, nezvykle hodn\u011b plakala a komunikace byla mo\u017en\u00e1 pouze prost\u0159ednictv\u00edm gest. Rodi\u010de za\u010d\u00ednali b\u00fdt nejist\u00ed, proto\u017ee na tamn\u00ed klinice bylo v\u0161echno velmi obt\u00ed\u017en\u00e9. P\u0159est\u011bhov\u00e1n\u00ed rodiny do Horn\u00edho Rakouska v\u0161ak poskytlo p\u0159\u00edle\u017eitost po\u017e\u00e1dat o druh\u00fd posudek na Majin sluch v Keplerov\u011b univerzitn\u00ed nemocnici v Linci.<\/a><\/p>\n

KUK Linec: rychl\u00e1 p\u00e9\u010de a otev\u0159en\u00e1 komunikace!<\/h2>\n

V KUK v Linci byla v\u0161echna vy\u0161et\u0159en\u00ed provedena rychle a stav sluchu byl objasn\u011bn b\u011bhem t\u00fddne, kdy ji\u017e mohli vyzkou\u0161et nasazen\u00ed naslouch\u00e1tek. Okam\u017eit\u011b tak\u00e9 za\u010dali s programem v\u010dasn\u00e9 intervence.
\n\u201eMaja v\u0161ak neprojevovala \u017e\u00e1dn\u00e9 reakce a mohli jsme si v\u0161imnout, \u017ee za\u010d\u00edn\u00e1 b\u00fdt nerv\u00f3zn\u00ed,\u201c vzpom\u00edn\u00e1 jej\u00ed otec. Logopedka Ackerlov\u00e1 potvrzuje, \u017ee v\u00fdvoj \u0159e\u010di byl s naslouch\u00e1tky nastartov\u00e1n, ale nepostupoval odpov\u00eddaj\u00edc\u00edm zp\u016fsobem.
\nP\u0159i ztr\u00e1t\u011b sluchu 75 a\u017e 80 dB n\u011bkdy naslouch\u00e1tka nesta\u010d\u00ed pro rozvoj \u0159e\u010di odpov\u00eddaj\u00edc\u00ed v\u011bku. Kochle\u00e1rn\u00ed implant\u00e1ty v\u0161ak mohou pomoci. \u201eDoporu\u010dili jsme operaci co nejd\u0159\u00edve, proto\u017ee Maja ztratila mnoho \u010dasu,\u201c vysv\u011btluje Ackerlov\u00e1.
\n\u201eZpo\u010d\u00e1tku jsme se b\u00e1li \u2013 v\u017edycky to zn\u00ed trochu \u0161patn\u011b, kdy\u017e se mluv\u00ed o operaci hlavy.\u201c Patrick Beganovic vzpom\u00edn\u00e1. Po \u010detn\u00fdch rozhovorech s chirurgem Zwittagem, logopedkou Ackerlovou a t\u00fdmem ran\u00e9 intervence FLIP i s ostatn\u00edmi rodi\u010di d\u011bt\u00ed s implant\u00e1ty si rodi\u010de vyjasnili nejasnosti a dozv\u011bd\u011bli se v\u00edce informac\u00ed o dostupn\u00fdch mo\u017enostech.<\/p>\n

Kochle\u00e1rn\u00ed implantace na obou u\u0161\u00edch<\/h2>\n

B\u011bhem p\u0159est\u00e1vky na k\u00e1vu v pr\u00e1ci Patricka p\u0159ekvapilo, kdy\u017e kolega za\u010dal mluvit o tom, \u017ee jeho dcera m\u00e1 oboustrann\u00e9 kochle\u00e1rn\u00ed implant\u00e1ty. Kolega ho povzbuzoval: \u201eNed\u011blej si starosti. P\u0159ij\u010f na n\u00e1v\u0161t\u011bvu a uvid\u00ed\u0161, jak se m\u00e1 dce\u0159i s kochle\u00e1rn\u00edmi implant\u00e1ty vede.\u201c Povzbuzeni pozitivn\u00edmi p\u0159\u00edb\u011bhy a zku\u0161enostmi se rodi\u010de nakonec rozhodli.
\nMajin pr\u00e1h byl na obou stran\u00e1ch tak vysok\u00fd, \u017ee sluchadla nesta\u010dila a nejlep\u0161\u00edm rozhodnut\u00edm bylo vybavit ob\u011b strany CI<\/a>. Logopedka Ackerlov\u00e1 vysv\u011btluje v\u00fdhody sou\u010dasn\u00e9 implantace na obou stran\u00e1ch: \u201ePodn\u011bty pak p\u0159ich\u00e1zej\u00ed z obou stran sou\u010dasn\u011b. Po implantaci s \u010dasovou prodlevou by druh\u00e9 ucho mohlo dokonce ve v\u00fdvoji sluchu d\u00e1le zaost\u00e1vat, ale nemuselo tomu tak nutn\u011b b\u00fdt\u201c.
\nNakonec se rodi\u010de rozhodli, \u017ee Maji nechaj\u00ed implantovat ob\u011b strany najednou, v r\u00e1mci jedn\u00e9 operace. \u201eNecht\u011bli jsme ji vystavovat dal\u0161\u00edmu stresu p\u0159i druh\u00e9 operaci.\u201c<\/p>\n

Spojte se s ostatn\u00edmi<\/h2>\n

\u201eMajiny o\u010di se opravdu zv\u011bt\u0161ily,\u201c vzpom\u00edn\u00e1 otec na prvn\u00ed aktivaci CI procesoru. \u201eOkam\u017eit\u011b se pod\u00edvala spr\u00e1vn\u00fdm sm\u011brem, aby zjistila, odkud zvuk p\u0159ich\u00e1z\u00ed, co\u017e s naslouch\u00e1tkem nikdy ned\u011blala.\u201c
\n\u00dasp\u011bch dokazuje, \u017ee rodi\u010de a t\u00fdm m\u011bli pravdu. \u201eTe\u010f u\u017e Maja dok\u00e1\u017ee rozli\u0161it zvuky r\u016fzn\u00fdch vozidel na ulici. U\u017e rozum\u00ed spoust\u011b v\u011bc\u00ed a nemus\u00edme pou\u017e\u00edvat tolik gest. Sna\u017e\u00ed se komunikovat a u\u017e um\u00ed \u0159\u00edkat jednotliv\u00e1 slova, jako nap\u0159\u00edklad m\u00e1ma, t\u00e1ta, babi\u010dka\u2026\u201c. Zm\u011bnilo se i Majino chov\u00e1n\u00ed: \u201eU\u017e tolik nepl\u00e1\u010de, nen\u00ed nerv\u00f3zn\u00ed a je mnohem spokojen\u011bj\u0161\u00ed!\u201c Zlep\u0161ila se tak\u00e9 jej\u00ed pozornost a s pan\u00ed z t\u00fdmu FLIP si hraje po celou dobu sezen\u00ed.\u201c
\nPatrick Beganovic vysv\u011btluje prvn\u00ed emoce, kter\u00e9 rodi\u010de poci\u0165uj\u00ed, kdy\u017e zjist\u00ed, \u017ee jejich d\u00edt\u011b je nesly\u0161\u00edc\u00ed. \u201eNa za\u010d\u00e1tku jste prost\u011b v \u0161oku a nechcete se s t\u00edm sm\u00ed\u0159it. Ale rad\u00edm v\u00e1m, abyste hodn\u011b komunikovali s l\u00e9ka\u0159i a dal\u0161\u00edmi odborn\u00edky. Pokud je to mo\u017en\u00e9, seznamte se s dal\u0161\u00edmi rodi\u010di d\u011bt\u00ed s CI\u201c. V\u0161em doporu\u010duje, aby se v t\u00e9to situaci spojili s ostatn\u00edmi, proto\u017ee \u201enez\u016fstanete se sv\u00fdmi starostmi sami!\u201c. M\u00e1jin chirurg Zwittag se raduje spolu s rodinou: \u201ePova\u017euji si za velkou \u010dest, \u017ee jako l\u00e9ka\u0159 mohu pomoci nesly\u0161\u00edc\u00edmu nebo hluboce nedosl\u00fdchav\u00e9mu d\u00edt\u011bti s kochle\u00e1rn\u00edm implant\u00e1tem.\u201c<\/p>\n<\/div><\/div><\/div><\/div><\/div>\n","protected":false},"excerpt":{"rendered":"

Patrick Beganovic vzpom\u00edn\u00e1 na diagn\u00f3zu sv\u00e9 dcery Maji – hlubokou ztr\u00e1tu sluchu. D\u00edky kochle\u00e1rn\u00ed implantaci v Univerzitn\u00ed nemocnici v Linzu se rodina nyn\u00ed raduje z toho, \u017ee sly\u0161\u00ed Majina prvn\u00ed slova.<\/p>\n","protected":false},"author":4,"featured_media":31948,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[500],"tags":[417,439,423],"class_list":["post-17436","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-zivot","tag-ci","tag-ci-children","tag-ci-users"],"yoast_head":"\nRan\u00e1 p\u00e9\u010de o sluch u d\u011bt\u00ed, kter\u00e9 se narodily jako nesly\u0161\u00edc\u00ed - Czech<\/title>\n<meta name=\"description\" content=\"Patrick vzpom\u00edn\u00e1 na diagn\u00f3zu sv\u00e9 dcery - hlubokou ztr\u00e1tu sluchu. 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